"The Star in Our Future is the Cure⦠through Research"
The focus of this year's conference is you and your family. The topics covered range from
research to physical therapy and caregiver support. It is an opportunity to share and learn
effective solutions to everyday problems. At the conference you will meet many
individuals who share the same diagnosis.
Los Angeles is a vibrant city with many opportunities to explore and visit. The
LAX Hilton has a free shuttle service to Marina Del Rey, where you will find a beach, plenty of
fine dinning, shopping, and relaxing.
The LAX Hilton was chosen because of its location, free shuttle service to the airport,
and ample true accessible rooms. These rooms were inspected by the SPF to make sure they truly
meet the needs of our members. All rooms are $95/night.
The conference begins with a Friday night dinner and a presentation. The conference
continues on Saturday with several topics ranging from research to therapy and relaxation.
Keynote: Gary Karp
Life on Wheels
The keynote will be delivered by Gary Karp, an internationally recognized public speaker,
corporate trainer, facilitator, author, and editor. He has been living — fully — with a T12
spinal cord injury since 1973 when he was injured in a fall from a tree at the age of eighteen.
Gary is going to tailor his talk towards our group - people who make a sometimes long trek
from refusing to use a cane when they should, refusing a walker until, finally, finding freedom
in using a wheelchair - a bit different from his personal perspective of a single catastrophic
incident that put him in a wheelchair.
For his unique and extensive contributions to disability awareness, in 2007 Gary was inducted
into the
Spinal Cord Injury Hall of Fame as a disability educator.
Since his injury, Gary has earned a graduate degree in architecture, worked for eleven years
in the presentation graphics industry as a designer and production manager, then began providing
ergonomics training and consultation services to companies in the San Francisco Bay Area where
he lives with his wife Paula and their yellow Labrador Retriever, Nava Leah.
He is the author of three books:
Life On Wheels: For the Active Wheelchair User
Choosing A Wheelchair: A Guide For Optimal Independence
Disability & the Art of Kissing
For more information about Gary, go to
http://www.lifeonwheels.org/
Bruce Binder and Lakshmi Voelker
Get Fit Where You Sit
Bruce Binder introduces us to Chair Yoga. It offers you the ability to improve your
health through an amazing form of adaptive exercise. You sit in a chair or your wheelchair
so you can receive yoga's healing and restorative benefits that have been known for thousands
of years. Yoga relaxes your body and mind, improves your musculoskeletal fitness and flexibility,
and elevates your overall health and well-being. Lakshmi Voelker created Lakshmi Voelker Chair
Yoga in 1982 and was joined by Bruce Binder in 2003. He manages the business while Lakshmi
spends her time certifying teachers around the US (including the Mayo Clinic). There are over
350 certified teachers in the US, Canada, and Japan. Their teacher training emphasizes
contraindications including an entire section on wheelchair yoga. They will explain Chair Yoga
and then have everyone participate in a group experience and demonstration.
Featured Speaker: Dr John Fink
Current Research and Understanding of HSP and PLS---What's New and Exciting
Dr. Fink has been the Scientific Medical Advisor for the SPF since our founding. After graduating
in biology from the University of Cincinnati, and Medical School at the Medical College of Ohio,
he trained as a neurologist at the University of Virginia and in specialized aspects of neurology
and medical genetics at the National Institutes of Health. As a Professor of Neurology at the
University of Michigan he directs the neurogenetic disorders program. He also studies genes that cause
these disorders, recently identifying two genes that cause forms of HSP, and is developing animal models
of these diseases, a pathway toward finding a cure. He also trains physicians and scientists who are
studying these disorders. He was the recipient of an SPF research award in 2003 and again in 2006.
Dr Corey Braastad
Genetics and HSP/PLS Testing
Dr. Braastad, a member of the Board of Directors for the SPF, is also currently a
Scientist/ Manager of Operations at Athena Diagnostics. Athena Diagnostics is a molecular
genetics diagnostics company specializing in the diagnosis of rare neurological, renal and
endocrine disorders. At Athena he has led teams that (1) develop and launch new diagnostic
assays, (2) routinely run diagnostic tests on patient samples, and (3) improve the quality
of diagnostic tests by improving result interpretation. He is currently leading efforts to
implement a DNA sequence variant investigation program and also a quality improvement
program at Athena. Dr. Braastad received his undergraduate degree from the University of
Massachusetts Dartmouth. As a graduate student at Brown University, he was in the Molecular
and Cellular Biology and Biochemistry (MC&B) Department working on defining a DNA damage
inducible gene promoter. He then worked as a post-doctoral fellow at the University of
Massachusetts Medical School in the Department of Cell Biology to define the cell-cycle
regulated histone H4 regulatory elements.
Mark Weber
Research Grants Evaluation
The SPF receives many more research grants than it can fund. It is important that it fund
projects that are scientifically sound. Mark will explain to us the way our research grants
are evaluated by our Scientific Advisory Board, a group of neurology specialists who tell us
which research proposals are most worthy of our funding. He will also explain how the Board
of Directors then selects those grants that will be funded.
Mark is a founding Board member, co-chaired the Foundation Steering Committee and served as
the first SPF President. He is an attorney with eleven years experience as an Assistant
Attorney General and Assistant District Attorney. Mark has been an active SPF community leader
since 1999, launching and managing PLS Friends, and serving as editor of a PLS newsletter.
Mark holds a BA in economics and psychology and a JD. Mark and his wife and two boys live in
Sherman, CT. Mark serves the SPF as Legal Counsel and also chairs the Research Committee.
Jim Campbell
Caregivers
Jim will lead a breakout session on issues specific to caregivers.