Articles submitted by our community

Note: Special thanks go to the many caring contributors and to Cheryl Schumer, the founder of the first HSP website and to Thurza Campbell, editor of Synapse Newsletter (a PLS newsletter that now serves both the HSP and PLS communities), who have given permission to re-print some of their articles. Please note that some articles have been edited to fit space. 

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Index of articles shared by our patient community

Accepting a cane

AFOs - tips on selection

Accessible Vehicles

All Fall Down

Biking - making adaptations

Canes - selection and use

Clothing tips for women in wheelchairs
Aide dogs
Appreciation

Baclofen pump - overview
Baclofen pump journal

Bidets - A Practical Aide

Living with bulbar symptoms - tips

Dean's Posts - inspirational
Disclosing to a potential employer

Dos and Dont's for friends

Drugs - Issues with safety and side effects
DUI also refers to medication

Everybody knows, nobody cares (accepting devices)
Excerpts regarding speech challenges
Gene testing

Gene testing - opinion piece

Hand controls for your car
Home safety check-list
Keepers
Lessons learned

Letter to the Special People in my Life
Living with Disability

Massage - a medical tax deduction

My HSP story - Aldert

My HSP story - Brad
My PLS diagnosis story

Open the Cage - dealing with a new identity
Pain management |
Parallel bars for exercise - Dale
Patterned electrical neuromuscular stimulation

Personal journey - Lynn's PLS story (a PDF file from a PPS; slides don't advance automatically)

Perspectives

Scooters - thoughts to consider before buying
Social security disability programs - how to claim for disability
SSDI determination - behind the scenes
Stretching exercises

Speech challenges

Stair Glides - suggestions
Tips on shoes
Warning signs of caregiver stress
Why exercise is important to us

Articles shared by John K. Fink, M.D., SPF Medical Advisor

HSP Progression