How to Help


We operate out of the strength of our community, caring friends and sponsors. Your help makes a difference! Our volunteers give many hours of their time annually, and the opportunities to help are as varied as our helpers. They are our State Ambassadors and their teams. They write stories for our Synapse Newsletter. They help with peer to peer fundraising. They write their senators about funding rare diseases, share ideas and skills, and so much more. Our volunteers are vital to The Spastic Paraplegia Foundation’s mission for those we serve. 

Please contact us at volunteer@sp-foundation.org to help in one of the areas below or to suggest another way you can get involved.

Support Research to Speed Our Cures by Volunteering

Below you’ll find information on some of the ways you can help SP Foundation in their search for a cure to PLS and HSP.