An invaluable tool for research are the brains and spinal cords of deceased people with movement disorders such as HSP and PLS. The National Institute of Health has made it possible for the Brain Bank at the University of Miami to support the cost of removal and transport of these donated organs from yourself or loved ones post mortem. Scientists worldwide will have access to samples of these tissues for many years to come as they stive closer and closer to a cure. Please visit the following link to the University of Miami Brain Endowment Bank to make arrangements ahead of time: www.brainbank.med.miami.edu
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About the University of Miami Brain Endowment Bank:
The University of Miami’s Brain Endowment Bank is a National Institutes of Health (NIH) NeuroBioBank, one of six designated biorepositories in the nation. The Brain Bank supports medical and scientific researchers who study the human brain in search of better medications and treatments, prevention, and ultimately, a cure. Brain donation after death supports the health of the next generation. The University of Miami Brain Endowment Bank provides family members with neuropathology reports or brain autopsy reports. These reports provide a comprehensive look at the brain at time of donation. This ensures that the family can be absolutely certain of the disease process their loved one suffered from.
DON'T MISS OUT! Come hear the very latest about what is known about and what hope we have for a cure for HSP and PLS. Also, you will love meeting and learning from over one hundred other people with these conditions. Make friends, learn from others about how to cope, the best tools and just have a great time.
When Clinical Trials begin in 2017 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
93 cents of every dollar you donate goes into our mission of research and service. 4 cents goes to fundraising and 3 cents goes to data management and general expenses. Our all volunteer Scientific Advisory Board makes sure that we are supporting only the very best research projects on the planet. The Spastic Paraplegia Foundation is an all volunteer run foundation. Our highly skilled staff, Scientific Advisory Board, Medical Advisors, CPA, Attorney, President, Board Members - all of us are working hard every day probono because we strongly believe in this cause. We know a cure is right within reach and we ask you to please join us in reaching by making a tax deductible donation.