The primary focus of SPF is to raise funds to support research to find the causes, treatments and cures for Hereditary Spastic Paraplegia and Primary Lateral Sclerosis. Our major fundraising activity consists of a TeamWalk. Individuals can help organize local fundraisers. Please review the Fundraiser Event Form and contact us with your ideas!
People are also needed to secure corporate sponsorships and help with grant applications.
The most effective way to get sponsorships is to ask people directly. The next-best way is a letter-writing campaign. All donations are appreciated and they add up!
Make a list of everyone you know. Friends, family, co-workers, businesses you frequent and groups you belong to. For regular mail, please enclose a pre-addressed envelope for them to use.
We can also prepare a personal TeamWalk web page for you, allowing your family and friends to link right to it and make safe, online credit card donations.
Get started with the Sample Letter. Our sample letter makes it easy to launch a letter writing campaign.
You can have your own TeamWalk Webpage with your photo and letterwhere people can make online credit card donations through PayPal, a secure site for online business. Email your friends and give them a link to your website. Visit www.sp-foundation.org for more information on how we can set up a web page for you.
Ask your family and friends to register for the TeamWalk and walk alongside you! Set a fundraising goal as a group, and assign individual goals from there. Sponsorships are the most important part of our TeamWalk, so don’t stop until you hit your target!
You can organize a small Family and Friends Fundraiser! Hold a bake sale, car wash or a spaghetti supper! If you have competitive family and friends, have a fundraising contest. Check with your employer, local PTA, civic or religious group to see if they can help! Or, ask your beauty salon or other service shop to hold a special day.
Our Annual Conference in Seattle Washington June 26-28, 2015 was a huge success!! From all reports we've heard, people left feeling quite a bit more educated about both HSP and PLS, a lot more inspired with new hope and energy and feeling like they had a good time visiting with new friends and seeing a beautiful city with mountains and shoreline. We also ate, drank and were merry and everyone went home with a few free SPF/Seattle souvenirs. Videos of the presentations are now on our website. Just click "What We Do" & then "Annual Conference Recap." Next June our conference will be in "The Windy City" of Chicago. Hotel details will be worked out in the next couple of months. Thanks everyone for attending!
Whether you are suffering from HSP or PLS, have a family member or friend who is or just have a heart and want to do something to really help out, every gift really does a world of good and is very much appreciated. Donate Now
We operate out of the strength of our community, caring friends and sponsors. Your help makes a difference! Our volunteers give many hours of their time annually, and the opportunities to help are as varied as our helpers. Read more.