The primary focus of SPF is to raise funds to support research to find the causes, treatments and cures for Hereditary Spastic Paraplegia and Primary Lateral Sclerosis. Our major fundraising activity consists of a TeamWalk. Individuals can help organize local fundraisers. Please review the Fundraiser Event Form and contact us with your ideas!
People are also needed to secure corporate sponsorships and help with grant applications.
The most effective way to get sponsorships is to ask people directly. The next-best way is a letter-writing campaign. All donations are appreciated and they add up!
Make a list of everyone you know. Friends, family, co-workers, businesses you frequent and groups you belong to. For regular mail, please enclose a pre-addressed envelope for them to use.
We can also prepare a personal TeamWalk web page for you, allowing your family and friends to link right to it and make safe, online credit card donations.
Get started with the Sample Letter. Our sample letter makes it easy to launch a letter writing campaign.
You can have your own TeamWalk Webpage with your photo and letterwhere people can make online credit card donations through PayPal, a secure site for online business. Email your friends and give them a link to your website. Visit www.sp-foundation.org for more information on how we can set up a web page for you.
Ask your family and friends to register for the TeamWalk and walk alongside you! Set a fundraising goal as a group, and assign individual goals from there. Sponsorships are the most important part of our TeamWalk, so don’t stop until you hit your target!
You can organize a small Family and Friends Fundraiser! Hold a bake sale, car wash or a spaghetti supper! If you have competitive family and friends, have a fundraising contest. Check with your employer, local PTA, civic or religious group to see if they can help! Or, ask your beauty salon or other service shop to hold a special day.
DON'T MISS OUT! Come hear the very latest about what is known about and what hope we have for a cure for HSP and PLS. Also, you will love meeting and learning from over one hundred other people with these conditions. Make friends, learn from others about how to cope, the best tools and just have a great time.
When Clinical Trials begin in 2017 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
93 cents of every dollar you donate goes into our mission of research and service. 4 cents goes to fundraising and 3 cents goes to data management and general expenses. Our all volunteer Scientific Advisory Board makes sure that we are supporting only the very best research projects on the planet. The Spastic Paraplegia Foundation is an all volunteer run foundation. Our highly skilled staff, Scientific Advisory Board, Medical Advisors, CPA, Attorney, President, Board Members - all of us are working hard every day probono because we strongly believe in this cause. We know a cure is right within reach and we ask you to please join us in reaching by making a tax deductible donation.