Individuals are welcome (and needed!) to organize local Connections that may include a fundraising initiative. We can provide ideas, guidance and support in organizing your special event.
Connections are special events that bring our community members together to share stories, resources, treatment programs and concerns as well as learn about treatment therapies and research. Connections can range from small, casual get-togethers to formal events with one or more featured programs or speakers. The type of Connection depends upon the Connection organizer’s interests, abilities and geographic location (i.e., how many other community members are in the organizer’s area).
The Connections Resource Book provides suggestions to help you in organizing and hosting a successful Connection.
Here are some ideas that could be used to help raise funds for research:
Bike-a-thon, roll-a-thon, dance-a-thon, walk-a-thon or similar activity
Restaurant Promotion, where a restaurant donates a portion of sales on aparticular date. Or try a Coupon Booklet Promotion – some restaurants or grocery store chains offer coupon books.
Social – a barbecue, picnic, breakfast, or dinner. Sell tickets for the meal that will also include a donation. You can add a raffle or auction to raise additional funds.
Hold a “party plan” event with a direct-selling company willing to donate a percentage of the proceeds (Tupperware, Pampered Chef and Avon are popular choices).
Bake Sale, Car Wash, Rummage or Yard Sale, or Gift Wrapping Table
It is important to involve local businesses as sponsors of your event. Sponsors only have to be asked.
Giving Tuesday was a great start on our year end goal. So far we have raised over $37,000. Our anonymous donor will match every donation dollar for dollar up to $175,000 until January 15, 2017. That's right, every donation you make will be doubled so you will receive twice as much satisfaction and double the number of people you will help with your wonderful and most appreciated generosity. This is 40% more than was matched last year so we are asking everyone to stretch your giving as well to make sure we use every nickel of this match. We can do it!
When Clinical Trials begin in 2017 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
93 cents of every dollar you donate goes into our mission of research and service. 4 cents goes to fundraising and 3 cents goes to data management and general expenses. Our all volunteer Scientific Advisory Board makes sure that we are supporting only the very best research projects on the planet. The Spastic Paraplegia Foundation is an all volunteer run foundation. Our highly skilled staff, Scientific Advisory Board, Medical Advisors - CPA, Attorney, President, Board Members - all of us are working hard every day probono because we strongly believe in this cause. We know we can get to our goal if we all do our very best. We ask you to please join in our efforts by making a donation.