Individuals are welcome (and needed!) to organize local Connections that may include a fundraising initiative. We can provide ideas, guidance and support in organizing your special event.
Connections are special events that bring our community members together to share stories, resources, treatment programs and concerns as well as learn about treatment therapies and research. Connections can range from small, casual get-togethers to formal events with one or more featured programs or speakers. The type of Connection depends upon the Connection organizer’s interests, abilities and geographic location (i.e., how many other community members are in the organizer’s area).
The Connections Resource Book provides suggestions to help you in organizing and hosting a successful Connection.
Here are some ideas that could be used to help raise funds for research:
Bike-a-thon, roll-a-thon, dance-a-thon, walk-a-thon or similar activity
Restaurant Promotion, where a restaurant donates a portion of sales on aparticular date. Or try a Coupon Booklet Promotion – some restaurants or grocery store chains offer coupon books.
Social – a barbecue, picnic, breakfast, or dinner. Sell tickets for the meal that will also include a donation. You can add a raffle or auction to raise additional funds.
Hold a “party plan” event with a direct-selling company willing to donate a percentage of the proceeds (Tupperware, Pampered Chef and Avon are popular choices).
Bake Sale, Car Wash, Rummage or Yard Sale, or Gift Wrapping Table
It is important to involve local businesses as sponsors of your event. Sponsors only have to be asked.
We are excited that Giving Tuesday is coming up soon. It is a once a year event and is a perfect accent to the holiday season. Unbeknownst to the commercial world, the holiday season is not about who gets more for me, me, me. It is about that special feeling you get when you know you have really helped out someone you care about or love. It is knowing that the dollar you give today is going to blossom into a million dollars worth of relief from suffering for the people with HSP and PLS. Welcome to Giving Tuesday and we Thank You for your consideration.
When Clinical Trials begin in 2017 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
We operate out of the strength of our community, caring friends and sponsors. Your help makes a difference! Our volunteers give many hours of their time annually, and the opportunities to help are as varied as our helpers. Read more.