CA WALK ’n ROLL & Connection. September 24, 2016. 16th year. 37 attendees - SHARE AND COMPARE discussion after lunch while friends and family cleaned up.
It seemed people enjoyed not having to go on an actual walk or roll and we had changed up the venue and location this year and fewer people attended but money was comparable. People were already talking about next year.
The “walk” consisted for those who wanted, toured the Little Church, 1874, and Craig gave a brief history. Many more raffle items donated this year which seemed to be the highlight of the day and there was $775 in cash just for the raffle.
Attendees were encouraged to bring a raffle item or two and most did. Four members did their annual letter campaign and were Walker-by-Proxy. All four contributed greatly to the bottom line. Linda walked for the PLSers (Hank, Lee and Dave) and Jean walked for Jackie. Jean made the tags.
We have a very committed group and “members” came from southern CA, northern CA, OR and Jean from Vancouver. PLSers and HSPers really appreciate the opportunity to “share and compare” their progression from the previous year.
We are excited that Giving Tuesday is coming up soon. It is a once a year event and is a perfect accent to the holiday season. Unbeknownst to the commercial world, the holiday season is not about who gets more for me, me, me. It is about that special feeling you get when you know you have really helped out someone you care about or love. It is knowing that the dollar you give today is going to blossom into a million dollars worth of relief from suffering for the people with HSP and PLS. Welcome to Giving Tuesday and we Thank You for your consideration.
When Clinical Trials begin in 2017 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
We operate out of the strength of our community, caring friends and sponsors. Your help makes a difference! Our volunteers give many hours of their time annually, and the opportunities to help are as varied as our helpers. Read more.