CA WALK ’n ROLL & Connection. September 24, 2016. 16th year. 37 attendees - SHARE AND COMPARE discussion after lunch while friends and family cleaned up.
It seemed people enjoyed not having to go on an actual walk or roll and we had changed up the venue and location this year and fewer people attended but money was comparable. People were already talking about next year.
The “walk” consisted for those who wanted, toured the Little Church, 1874, and Craig gave a brief history. Many more raffle items donated this year which seemed to be the highlight of the day and there was $775 in cash just for the raffle.
Attendees were encouraged to bring a raffle item or two and most did. Four members did their annual letter campaign and were Walker-by-Proxy. All four contributed greatly to the bottom line. Linda walked for the PLSers (Hank, Lee and Dave) and Jean walked for Jackie. Jean made the tags.
We have a very committed group and “members” came from southern CA, northern CA, OR and Jean from Vancouver. PLSers and HSPers really appreciate the opportunity to “share and compare” their progression from the previous year.
DON'T MISS OUT! Come hear the very latest about what is known about and what hope we have for a cure for HSP and PLS. Also, you will love meeting and learning from over one hundred other people with these conditions. Make friends, learn from others about how to cope, the best tools and just have a great time.
When Clinical Trials begin in 2017 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
93 cents of every dollar you donate goes into our mission of research and service. 4 cents goes to fundraising and 3 cents goes to data management and general expenses. Our all volunteer Scientific Advisory Board makes sure that we are supporting only the very best research projects on the planet. The Spastic Paraplegia Foundation is an all volunteer run foundation. Our highly skilled staff, Scientific Advisory Board, Medical Advisors, CPA, Attorney, President, Board Members - all of us are working hard every day probono because we strongly believe in this cause. We know a cure is right within reach and we ask you to please join us in reaching by making a tax deductible donation.