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Email support/information groups

The SPF sponsors email support groups for our community. Although there are separate email groups for HSP and PLS, we encourage people to consider joining both groups, as there are many common concerns as well as cross over diagnosis of the conditions. HSP and PLS mimic one another with the same progressive spasticity and weakness of the legs.

The email groups were started prior to the formation of SPF by people who wanted to establish a way for people to connect with others. Cheryl Schumer started the HSP-L email group in 1997. Mark Weber started the PLS Friends email group in 1999. They continue to operate these important email support groups as service programs for our SPF community.

Please note that you will receive a lot of email messages every day with these groups. There will be conversational postings as well as posts about daily life issues and discussions regarding the disorders and treatment. NOTE: If this is too much email, you can modify your settings to receive a Digest that will come once or twice per day and contain all the messages. 

Join the HSP-L or PLS-Friends email group

Technology for the HSP-L email group is generously donated by the  University of Georgia. To subscribe, use the form below. You can also subscribe, unsubscribe, modify your subscription options, read/post messages, and access the archives from the University of Georgia's LISTSERV website. Please refer to the HSP-L FAQ for instructions on getting a password and managing your subscription by email or using the LISTSERV website.

Notice: Please DO NOT subscribe to our mailing list if you currently use a Challenge/Reply type of spam software on your computer such as 0spam or dropspam. These programs are INCOMPATIBLE with mailing lists.

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Please note that the default subscription format is to receive individual mailings. If you prefer to receive the digest version or to read the postings at its website, you will need to modify your options after you subscribe. See the HSP-L FAQ for details.

Join PLS-Friends

PLS-Friends group is a Yahoo Group. Please note that some members have Amyotrophic Lateral Sclerosis (ALS) because PLS can mimic ALS in its early years and those subscribers often remain in the group. To join, go to http://groups.yahoo.com. If you are a new user at Yahoo, you will need to register and then you can join the PLS-Friends Group or any other group of interest.

If you have trouble, please contact Mark.  Mark also operates the PLS-News Group which is designated for news-only postings regarding PLS.

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last updated 01/24/2010
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