|
The SPF sponsors email support groups for our
community. Although there are separate email groups for
HSP and PLS, we encourage people to consider joining
both groups, as there are many common concerns as well
as cross over diagnosis of the conditions. HSP and PLS
mimic one another with the same progressive spasticity
and weakness of the legs.
The email groups were started prior to the formation
of SPF by people who wanted to establish a way for
people to connect with others. Cheryl Stapley started
the HSP-L email group in 1997. Mark Weber started the PLS
Friends email group in 1999. They continue to operate
these important email support groups as service programs
for our SPF community.
Please note that you will receive a lot of email
messages every day with these groups. There will be
conversational postings as well as posts about daily
life issues and discussions regarding the disorders and
treatment. NOTE: If this is too much email, you can
modify your settings to receive a Digest that will come
once or twice per day and contain all the messages.
Join the HSP-L
or PLS-Friends email group
Technology for the HSP-L email group is generously
donated by the University of Georgia. To subscribe, use the form below. You can
also subscribe, unsubscribe, modify your subscription
options, read/post messages, and access the archives
from the University of Georgia's LISTSERV
website. Please refer to
the HSP-L
FAQ for instructions on getting a password
and managing your subscription by email or using the
LISTSERV website.
Notice: Please DO NOT subscribe to
our mailing list if you currently use a Challenge/Reply type of spam software on
your computer such as 0spam or dropspam. These programs are INCOMPATIBLE with
mailing lists.
Please note that the default subscription format is
to receive individual mailings. If you prefer to receive
the digest version or to read the postings
at its website, you will need to modify your options
after you subscribe. See the HSP-L
FAQ for details.
Join PLS-Friends
PLS-Friends group is a Yahoo Group. Please note that
some members have Amyotrophic Lateral
Sclerosis (ALS) because PLS can mimic ALS in its early
years and those subscribers often remain in the group.
To join, go to
http://groups.yahoo.com. If you are a new user at
Yahoo, you will need to register and then you can join
the PLS-Friends Group or any other group of interest.
If you have trouble, please
contact Mark.
Mark also operates the PLS-News Group which is
designated for news-only postings regarding PLS.
|
