HSP: Sid Clark PLS: Hank Chiuppi
We had a great spring meeting. Margaret McGovern-Denk (MS,OTR/L Northwestern Clinic) gave us a beautiful presentation on exercising and stretching given neuromuscular conditions. She also covered Spasticity Challenges and options. With several members in the hospital or recovering from Baclofen pump, members discussed their personal pump problems and experiences. We also discussed a number of other items of interest including hand controls for the car.
We had 13 in our group for this meeting which was held in the Buffalo Grove Arboretum clubhouse. For lunch we ordered Jimmy Johns’ subs and had the driver take the connection picture. For our fall meeting several from Wisconsin have expressed an interest in attending and are most welcome. By each of us sharing we have learned a lot. For information on future meetings email us at SPFIllinois@gmail.com.
DON'T MISS OUT! Come hear the very latest about what is known about and what hope we have for a cure for HSP and PLS. Also, you will love meeting and learning from over one hundred other people with these conditions. Make friends, learn from others about how to cope, the best tools and just have a great time.
When Clinical Trials begin in 2017 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
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