HSP: Sid Clark PLS: Hank Chiuppi
We had a great spring meeting. Margaret McGovern-Denk (MS,OTR/L Northwestern Clinic) gave us a beautiful presentation on exercising and stretching given neuromuscular conditions. She also covered Spasticity Challenges and options. With several members in the hospital or recovering from Baclofen pump, members discussed their personal pump problems and experiences. We also discussed a number of other items of interest including hand controls for the car.
We had 13 in our group for this meeting which was held in the Buffalo Grove Arboretum clubhouse. For lunch we ordered Jimmy Johns’ subs and had the driver take the connection picture. For our fall meeting several from Wisconsin have expressed an interest in attending and are most welcome. By each of us sharing we have learned a lot. For information on future meetings email us at SPFIllinois@gmail.com.
We are excited that Giving Tuesday is coming up soon. It is a once a year event and is a perfect accent to the holiday season. Unbeknownst to the commercial world, the holiday season is not about who gets more for me, me, me. It is about that special feeling you get when you know you have really helped out someone you care about or love. It is knowing that the dollar you give today is going to blossom into a million dollars worth of relief from suffering for the people with HSP and PLS. Welcome to Giving Tuesday and we Thank You for your consideration.
When Clinical Trials begin in 2017 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
We operate out of the strength of our community, caring friends and sponsors. Your help makes a difference! Our volunteers give many hours of their time annually, and the opportunities to help are as varied as our helpers. Read more.