Below is the schedule for this Fall’s Combined Federal Campaign (CFC) fairs. If you are interested in helping, you would sit by a table, hand out Spastic Paraplegia Foundation (SPF) literature and answer questions.
Most people do not know what HSP or PLS are or what the SPF does. We are hoping that volunteers can staff these booths and help educate federal employees about what we are all about. In turn, we are hoping that they will pick the SPF to contribute to.
If you have questions or can help, please contact me at firstname.lastname@example.org or
615-479-7369. I will get you registered to participate, mail you plenty of brochures, a table banner and a sample script to use if you like.
Most CFC fairs last only a couple of hours and are full of friendly volunteers and staff all geared towards raising money to help those in need.
Each year, millions of dollars are raised from the CFC. The bad news is because so little is known about HSP, PLS and the SPF very few federal employees chose the SPF to give to. Please help us educate more donors about what we go through and help raise more money for HSP and PLS research.
If you can help, please let me know as soon as possible. Many locations have cut off dates that we need to register by.
Dates listed with ** are for short presentations to a group of volunteers, usually just 2 or 3 minutes in length. There are no CFC fairs with these dates. I have a CFC script that can be used that will cover general information about HSP, PLS and the Spastic Paraplegia Foundation. There is also a longer speech available that you can use to educate larger groups and yourselves about HSP.
New Dates —
Wed, Nov 13 10:00AM-2:00PM Internal Revenue Agency, Corona, NY
Wed, Nov 13 10:00AM-2:00PM Farm Services Agency, Columbus, OH
Wed, Nov 13 9:00AM-12Noon Federal Aviation Admin., Jamaica, NY
Thurs, Nov 14 11:30AM-1:00PM Aberdeen Proving Ground, Harford Co, MD
Thurs, Nov 14 12Noon-2:00PM Centers for Medicare & Medicaid, Woodlawn, MD
Thurs, Nov 14 9:30AM-1:00PM Federal Building, Lincoln, NE
Thurs, Nov 14 7:00AM-10:00AM United States Postal Service, Nashville, TN
Mon, Nov 18 4:00PM-6:00PM United States Postal Service, Nashville, TN
Tues, Nov 19 1:00PM-3:00PM Dept. of Defense, Columbus, OH
Wed, Nov 20 10:00AM-1:00PM Nebraska National Guard, Lincoln, NE
Wed, Nov 20 11:30AM-1:00PM Social Security Administration, Woodlawn, MD
Thurs, Nov 21 12Noon-2:00PM Centers for Medicare & Medicaid, Woodlawn, MD
Thurs, Nov 21 11:00AM-1:00PM VA Regional Office, Nashville, TN
DON'T MISS OUT! Come hear the very latest about what is known about and what hope we have for a cure for HSP and PLS. Also, you will love meeting and learning from over one hundred other people with these conditions. Make friends, learn from others about how to cope, the best tools and just have a great time.
When Clinical Trials begin in 2017 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
93 cents of every dollar you donate goes into our mission of research and service. 4 cents goes to fundraising and 3 cents goes to data management and general expenses. Our all volunteer Scientific Advisory Board makes sure that we are supporting only the very best research projects on the planet. The Spastic Paraplegia Foundation is an all volunteer run foundation. Our highly skilled staff, Scientific Advisory Board, Medical Advisors, CPA, Attorney, President, Board Members - all of us are working hard every day probono because we strongly believe in this cause. We know a cure is right within reach and we ask you to please join us in reaching by making a tax deductible donation.