If you’re one of those people who dislikes their own birthday because it’s too much attention, then a fundraiser birthday party is for you. Basically, you use your birthday as an excuse to raise awareness and money for The Spastic Paraplegia Foundation. You could limit the invite list to your friend and family, or you could open it up to co-workers, community volunteers and even more. Here are your three tips to throwing yourself a fundraiser birthday party:
Digitally fundraise—For those family members and friends who feel uncomfortable sending money in the mail, set up an account on a fundraising website for people to donate online. You could set it up through Razoo, Punchbowl or even link them to the donate page on the SPF website that allows your friends and family to make their donation quick and easy. Here is the link: http://sp-foundation.org/get-involved/donate.html
Showcase HSP or PLS—The most important part of your fundraiser birthday party is educating your guests about HSP and/or PLS. HSP: http://sp-foundation.org/understanding-pls-hsp/hsp.html
Good Luck and Have Fun!
DON'T MISS OUT! Come hear the very latest about what is known about and what hope we have for a cure for HSP and PLS. Also, you will love meeting and learning from over one hundred other people with these conditions. Make friends, learn from others about how to cope, the best tools and just have a great time.
When Clinical Trials begin in 2017 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
93 cents of every dollar you donate goes into our mission of research and service. 4 cents goes to fundraising and 3 cents goes to data management and general expenses. Our all volunteer Scientific Advisory Board makes sure that we are supporting only the very best research projects on the planet. The Spastic Paraplegia Foundation is an all volunteer run foundation. Our highly skilled staff, Scientific Advisory Board, Medical Advisors, CPA, Attorney, President, Board Members - all of us are working hard every day probono because we strongly believe in this cause. We know a cure is right within reach and we ask you to please join us in reaching by making a tax deductible donation.