There is a study currently taking place on Inherited Neurological Disorders with the National Institute of Neurological Disorders and Stroke (NINDS). They will give participants a complimentary genetic diagnosis of their HSP type. Anyone who is interested should send an email to Alice B. Schindler, MS, CGC, Genetic Counselor/Research Coordinator Neurogenetics Branch/NINDS/NIH at schindlerab@mail.nih.gov.
Our Impact since our inception...
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Dollars Raised
Over 11,000,000 dollars for research!
