An invaluable tool for research are the brains and spinal cords of deceased people with movement disorders such as HSP and PLS. The National Institute of Health has made it possible for the Brain Bank at the University of Miami to support the cost of removal and transport of these donated organs from yourself or loved ones post mortem. Scientists worldwide will have access to samples of these tissues for many years to come as they stive closer and closer to a cure. Please visit the following link to the University of Miami Brain Endowment Bank to make arrangements ahead of time: www.brainbank.med.miami.edu
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About the University of Miami Brain Endowment Bank:
The University of Miami’s Brain Endowment Bank is a National Institutes of Health (NIH) NeuroBioBank, one of six designated biorepositories in the nation. The Brain Bank supports medical and scientific researchers who study the human brain in search of better medications and treatments, prevention, and ultimately, a cure. Brain donation after death supports the health of the next generation. The University of Miami Brain Endowment Bank provides family members with neuropathology reports or brain autopsy reports. These reports provide a comprehensive look at the brain at time of donation. This ensures that the family can be absolutely certain of the disease process their loved one suffered from.
We are excited that Giving Tuesday is coming up soon. It is a once a year event and is a perfect accent to the holiday season. Unbeknownst to the commercial world, the holiday season is not about who gets more for me, me, me. It is about that special feeling you get when you know you have really helped out someone you care about or love. It is knowing that the dollar you give today is going to blossom into a million dollars worth of relief from suffering for the people with HSP and PLS. Welcome to Giving Tuesday and we Thank You for your consideration.
When Clinical Trials begin in 2017 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
We operate out of the strength of our community, caring friends and sponsors. Your help makes a difference! Our volunteers give many hours of their time annually, and the opportunities to help are as varied as our helpers. Read more.