Dear medical device user,
The U.S. Food and Drug Administration (FDA) is looking at new methods to evaluate medical devices. A Planning Board has been tasked with identifying how to best meet the needs and concerns of you-the patient community. The Board would like to hear from you.
Please participate in a survey which should take about 20 minutes to complete. (If you cannot click the link above, please copy and paste this link into your browser: https://duke.qualtrics.com/SE/?SID=SV_cw4oE0T6UbxNW9T)
Please forward to your family, friends, colleagues, network.
The Board of Directors
Spastic Paraplegia Foundation
We are excited that Giving Tuesday is coming up soon. It is a once a year event and is a perfect accent to the holiday season. Unbeknownst to the commercial world, the holiday season is not about who gets more for me, me, me. It is about that special feeling you get when you know you have really helped out someone you care about or love. It is knowing that the dollar you give today is going to blossom into a million dollars worth of relief from suffering for the people with HSP and PLS. Welcome to Giving Tuesday and we Thank You for your consideration.
When Clinical Trials begin in 2017 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
We operate out of the strength of our community, caring friends and sponsors. Your help makes a difference! Our volunteers give many hours of their time annually, and the opportunities to help are as varied as our helpers. Read more.