Dr. Rebecca Schüle will present her recent paper:
Hereditary spastic paraplegia: Clinicogenetic lessons from 608 patients.
Ann Neurol. 2016 Apr;79(4):646-58. doi: 10.1002/ana.24611. Epub 2016 Mar 11.
Announcing the next CReATe Virtual Journal Club
Date: Mon, Oct 10, 2016
Time: 2PM Eastern Standard Time
Link to join: https://global.gotomeeting.com/join/943158941
For audio, you may use your computer mic/speakers through the link above or call in using your phone:
• United States (Toll-free): 1 877 568 4106
• Germany (Toll-free) 0 800 723 5270
• Audio pin (optional): Shown after joining the webinar
Meeting ID/Access Code: 943-158-941
The CReATe Virtual Journal Club is designed to help patients and families understand and discuss recent scientific papers about motor neuron diseases. Most of the articles are selected by patients and families enrolled in CReATe Connect. Enrollment is easy and free here https://www.rarediseasesnetwork.org/cms/create/patients/CReATe-Connect
We are excited that Giving Tuesday is coming up soon. It is a once a year event and is a perfect accent to the holiday season. Unbeknownst to the commercial world, the holiday season is not about who gets more for me, me, me. It is about that special feeling you get when you know you have really helped out someone you care about or love. It is knowing that the dollar you give today is going to blossom into a million dollars worth of relief from suffering for the people with HSP and PLS. Welcome to Giving Tuesday and we Thank You for your consideration.
When Clinical Trials begin in 2017 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
We operate out of the strength of our community, caring friends and sponsors. Your help makes a difference! Our volunteers give many hours of their time annually, and the opportunities to help are as varied as our helpers. Read more.