Synapse Newsletter


2016

  • 2016 Annual Conference Talks - Three New SPF Board Members - Board Business - Disability Law - Connections - Tina's Tips

  • Rare Disease Day - CRISPR Patent Litigation - Tek Robotic Mobilization Device, 2016 Pediatric HSP Conference - CASE report PLS - MNDs & UTIs - Hip Flexor Pain or Spasms? - Treat Your Feet - Marc Dollinger Runs the Orange County Marathon to Honor his Dad - Malin Dollinger's HSP Story - Connections - Tina's Tips

  • HSP/PLS Survival Kit - 10 Things to Know about Emergency Preparedness - Applebees Restaurants Help HSP & PLS - How to Get a Service Dog - SPF Offers Support - New Tek Mobility Device - Disability Law: 504 Rehab Act - SPF Awards Grants Worth $622,000 - What is CRISPR - Research Group on Motor Neuron Disorders - Tina's Tips

2015
  • International HSP Letter to Dr Rebecca Schule MD - SPF Board Business - Federal Employees Want to Help SPF - 2015 SPF Annual Conference Talks - Connections - Rebecca Hart Has 3 Top Finishes in European Tour - PLS: Getting Speech Back - Speech Generating Devices - ADA at 25 - Getting a Service Dog - Tina's Tips

  • SPF Board Business - How to be a State Ambassador - Connections - HSP & Exercise - It's All About Your Base - Life With Adaptive Sprots - My Wheelchair Experience - Be Your Own Best Advocate - To Parents of Kids with HSP - Earth Angels - IPhone Medical ID - Tina's Tips

  • Connections - Spreading Awareness - Athena Improves Affordability of Genetic Testing - Dr Fink's Recommend-ed Exercises - 2014 Research Awards - MS Drug Aids Walking - Gene Testing for HSP - Cause of HSP - Be Informed and Prepared - Useful Tips - HSP & Happiness - My Airport Experience - Rebecca Hart at White Fences

2014
  • Connections - How to Use Exercise Bands - 2014 Annual Conference Talks - Two Articles on How to Prevent Pressure Sores - A Personal Story About Foot Dragging

  • 2014 Annual Conference information,remedies and more…

2013
  • Annual Conference 2013 - Connections - Wheelchair Accessible Tranvels - Abilities Expos - Exercise and You - CFC Helping Research - A Decade with HSP, A Personal Story - How I Got My Service Dog Annie - LSVT Speech Therapy - New Comprehensive HSP Test

  • SPF Receives $24,000 from ExxonMobil - How to be a State Ambassador - Personal Stories: 8th Grader Life with HSP, HSP Family Experience, My Story About My Family with HSP, Love Yourself, Reflections from Boston - Research Sound Bytes - Planned Giving

2012
  • Exoskeletons, Rock Climbing, Stem Cells and more…

  • 2012 Annual Conference Summary, Event summaries and photos, HSP Research Article, Adaptive Sports and more…

  • Maze of Stem Cell Transplantation, Event summaries and photos, Falling into Life with HSP, Sit-to-Stand Exercise and more…

  • Annual Conference information, Event summaries and photos, 2011 Grant Awards, Electric Scooter Tips and more…

2011
  • Depression & Suicide – The Unspoken Worry, Mobility Marvels – Hand Controls for Your Car, A New Use for Botox and more…

  • Annual Conference summary, TeamWalk information, Million Rays of Hope campaign, Dealing with Drooling and more…

  • Living with HSP/PLS, Why Exercise, Research updates, Annual Conference 2011 registration form, and more…

  • Annual Conference agenda, NEALS/SPF Collaboration Working Group Meeting, Memorial Garden, Fall TeamWalk reviews, and more…

2010
  • Airplane Rides Fundraiser, Physician Directory, Exercise and You: The importance of Posture, and more…

  • National Conference summary, Outreach Committee survey results, Mike Weber’s Ride Across America, and more…

  • read…

  • read…

2009
2008
  • “Growing, Protecting or Repairing Corticospinal Motor Neurons,” from the spring NE Connection, Dr. Jeffrey Macklis, Living with HSP/PLS (regular column), Caregiving and more…

  • Living with HSP/PLS (regular column), Wheelchair options, more…

  • Living with HSP/PLS (regular column), Advances in HSP Research, more…

  • Medical research news, Living with HSP/PLS (regular column), and more…