The Spastic Paraplegia Foundation offers free tools and resources to help you find the answers you need.
The SPF has partnered with NEALS (Northeast ALS) consortium to create a list of clinics and physiciansacross 27 states and 3 Canadian provinces that are treating PLS and/or HSP patients and welcome new ones.
SP Foundation State Ambassadors are available to help you connect with local resources and events in your area. Find out who your current state Ambassador is and get their contact information here.
Post questions, get answers and meet new people. An excellent way to ask about drugs, therapies, progression and experiences. Individuals with an interest in both PLS and HSP are welcomed to join.
The community forum offers a wide variety of information, advice and answers to questions that many PLS and HSP patients have. It’s also a great resource for caregivers wanting to learn more about the diseases and how they can help a loved one.
See all the past SP Foundation Synapse Newsletters published since 2008. The newsletter is published quarterly and provides information on news, research, practical advice and a summary of local activities.
We are excited that Giving Tuesday is coming up soon. It is a once a year event and is a perfect accent to the holiday season. Unbeknownst to the commercial world, the holiday season is not about who gets more for me, me, me. It is about that special feeling you get when you know you have really helped out someone you care about or love. It is knowing that the dollar you give today is going to blossom into a million dollars worth of relief from suffering for the people with HSP and PLS. Welcome to Giving Tuesday and we Thank You for your consideration.
When Clinical Trials begin in 2017 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
We operate out of the strength of our community, caring friends and sponsors. Your help makes a difference! Our volunteers give many hours of their time annually, and the opportunities to help are as varied as our helpers. Read more.