Terms of Use, Disclaimer, Copyright, Privacy

Thank you for visiting the Spastic Paraplegia Foundation, Inc website. The mission of the Foundation is to find the cures for Hereditary Spastic Paraplegia and Primary Lateral Sclerosis.

The Spastic Paraplegia Foundation is proud to offer this site for informational, education and entertainment purposes. Content is based on expert opinion, professional advice and published experience, but does not represent therapeutic recommendation or prescription. For specific information and advice, consult your personal physician.

Terms of Use

This web site is for informational, education and entertainment purposes only and is intended for personal use only. See copyright notice for copyright restrictions.


The Foundation makes no express or implied warranties or representations of any kind, assumes no liability of any kind for the content of any information transmitted to or received by any individual and does not endorse or recommend in any way any such information.

By accessing the Foundation Web Site, you agree that under no circumstances shall the Foundation be liable for any damages whatsoever in connection with, arising out of or resulting from your use of the Web Site or any information contained in the Web Site.


Copyright 2003 – 2011. All Rights Reserved.


Any message posted or e-mailed to the Foundation is public, and the Foundation may use such messages in furtherance of its corporate purposes.

Any hypertext link contained in the Foundation Web Site is provided for convenience only.

Any reference to a commercial or noncommercial product, process, service, or company is not an endorsement or recommendation by the Foundation.

The Spastic Paraplegia Foundation does not endorse or recommend products, services, or manufacturers. The Foundation assumes no liability whatsoever for the use or contents of any product or service mentioned.

The Foundation is not responsible for the contents of any "off-site" Internet information referenced by or linked to the Foundation’s Internet site.

All information contained in the Foundation Web Site unless otherwise noted is copyrighted by and proprietary, and may not be reproduced, published, transmitted or distributed in any manner without the prior consent.

The SPF does not share or sell any identifying information about its donors or members to any outside organizations. We may use the information within our organization for the following purposes:

  • Mailings with information about the disorders and the Foundation’s programs and events
  • Mailings to invite you to join the Foundation
  • Telephone contact to invite you to help the Foundation achieve its mission
  • Email contact to respond to your questions, comments, or suggestions
  • Email contact to alert you to news updates and programs, as well as invitations to join the Foundation or to help the Foundation achieve its mission.

Our address, telephone, and email address are available on our contact us page. You may also email us at email.

© Copyright 2014 Spastic Paraplegia Foundation, Inc. All Rights Reserved | All information is completely confidential. The Spastic Paraplegia Foundation will under no circumstances allow any vendors or associations access to your information. Thank you for your continued support.