Yes. Here are a few examples:
-High arched feet (pes cavus). High arches occur because there is more weakness in the foot muscles that extend the foot backward and flatten the arch than in the muscles that flex the foot downward.
-Shortened Achilles tendons. Achilles tendons are often short, and generally shorten further as HSP progresses.
-Jumping feet (clonus). Clonus is an uncontrollable, repetitive jerking of muscles that makes the foot jump rapidly up and down. It occurs when the foot is in a position that causes a disruption of the signals from the brain, leading to an automatic stretch reflex.
-Hammer toes or bunions. These may occur due to imbalances in the strength and tone of muscles that maintain proper alignment of joints in the feet.
-Cold feet and/or foot swelling. This is most likely caused by poor circulation. Normally, muscle contractions in the legs help pump blood from the legs back to the heart. If the muscles are weakened, or if the person is relatively inactive, the blood flow from the legs may be decreased, and fluids may accumulate. This can cause swelling, or a sensation of “cold feet”.
Giving Tuesday was a great start on our year end goal. So far we have raised over $37,000. Our anonymous donor will match every donation dollar for dollar up to $175,000 until January 15, 2017. That's right, every donation you make will be doubled so you will receive twice as much satisfaction and double the number of people you will help with your wonderful and most appreciated generosity. This is 40% more than was matched last year so we are asking everyone to stretch your giving as well to make sure we use every nickel of this match. We can do it!
When Clinical Trials begin in 2017 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
93 cents of every dollar you donate goes into our mission of research and service. 4 cents goes to fundraising and 3 cents goes to data management and general expenses. Our all volunteer Scientific Advisory Board makes sure that we are supporting only the very best research projects on the planet. The Spastic Paraplegia Foundation is an all volunteer run foundation. Our highly skilled staff, Scientific Advisory Board, Medical Advisors - CPA, Attorney, President, Board Members - all of us are working hard every day probono because we strongly believe in this cause. We know we can get to our goal if we all do our very best. We ask you to please join in our efforts by making a donation.