#HSPandPLS Awareness Week August 23-29, 2020 Hosted by the Spastic Paraplegia Foundation Awareness Week takes place from August 23 - 29, 2020. The theme is “Challenge”. #HSPandPLS Awareness Week is a global inspiration to actively promote the message of rare disease medical research for #HSPandPLS. What can you do for #HSPandPLS Awareness Week? Get Going, Take the Challenge!
During Awareness Week, each day events take place around the world to raise awareness for #HSPandPLS. Many people create fundraisers to raise money for medical research with the Spastic Paraplegia Foundation. Join us each day at Noon, CDT for a global zoom visit for 30-minutes to help drive the conversation on #HSPandPLS and create a lasting challenge reaching out to our family of #HSPandPLS to help raise funds for medical research. Join the Zoom link here: (To be determined.)
What are the Daily Challenges for #HSPandPLS Awareness Week? Download #HSPandPLS Awareness Week flyer at this link: https://sp-foundation.org/get-involved/awareness-week/ --Sunday, Sport’s Day - 5K, GET AN A-THON GOING-Bike-a-thon, roll-a-thon, dance-a-thon, walk-a-thon, Wear your favorite sports team clothing, video yourself playing ping pong cup game, sport or A-Thon.
--Monday, Creative Arts Day - Do something artsy, musically, or creatively
--Tuesday, Sunglasses Day - Strike a pose in your favorite pair of sunglasses
--Wednesday, Super Hero Day - Honor one of your real life heroes (mom, dad, caregiver, fireman, police, nurse, pastor, etc.), Superman, Batman, Wonder Women, Spider Man etc.
--Thursday, Swag Day - Wear your favorite SPF swag colors or Tshirt
--Friday, Wacky Sock Day - Show off your fav wackiest socks, mismatched socks, or outfit, or someone you love wearing one of these
--Saturday, Sun Fun Day - Do a fun activity outside, even if it’s sitting on the porch, at a picnic table, beach, overlooking a mountain top Donate: Make your Awareness Challenge Count by Donating to Medical Research What Resources Are Available
SPF has a range of resources to help you find answers. Click here to discover a wealth of information on #HSPandPLS. Direct people to this link: https://sp-foundation.org/news-resources/
Stories – how people are getting involved!
People tell us stories of their challenges with #HSPandPLS Awareness, plus a roundup of online support! See the list of social media supporting spastic paraplegia on the SPF home page here. Direct people to this link: https://sp-foundation.org/
How Can I Fundraise during #HSPandPLS Awareness Week?
The Spastic Paraplegia Foundation is a charity that relies on private and public donations and grant funding to help fund medical research for those with #HSPandPLS. Donate to help fund medical research for #HSPandPLS by credit card, by clicking here: Direct people to this link: https://sp-foundation.networkforgood.com/projects/22291-spastic-paraplegia-foundation
Create a fundraising activity, like one of these listed.
(1) Virtual 5K Run Walk or Roll
Create a team by recruiting family and friends to participate. Using creative calculating, convert your time with a physical therapist, stretching or exercising toward a Virtual 5K. The average person can walk 3.1 miles in about an hour. Whatever you do for physical activity, count the time toward a Virtual 5K. Please make sure you check with your healthcare professional before doing anything new. Family and friends can help you raise funds by sponsoring your FUNraising 5K activities. For more information on Virtual 5K, click here. (2) Virtual Tea & Talk
We know thousands of you love Tea & Talking, so why not host one online? You can sign up for a nominal donation, get friends, family, and colleagues to join you with a virtual cup. Each person can pay a small amount to join, or whatever they feel comfortable donating.
(3) Virtual Wine Wednesday
Similar to Tea and Talk, Wine Wednesday is another great way to keep connected with others to discuss various wines. Together you can decide what your favorite wine is and donate the cost of a bottle of wine to SPF.
(4) Virtual Friday Night Cocktails
Used to having a drink with colleagues or friends on a Thursday or Friday night? You still can! Have a drink together online and each person can donate the price of their favorite drink to SPF.
(5) Facebook Fundraiser
Create your own fundraising naming Spastic Paraplegia Foundation as the “Nonprofit” cause, click here to exit to Facebook. Direct people to link: https://www.facebook.com/fundraisers?create&source=help_center_how_to_create_fundraise
(6) Use AmazonSmile: You shop. Amazon gives.
Every time you want to place an order on Amazon.com, use Smile.Amazon.com. It is the same website operated by Amazon with the same products, prices, and shopping features as Amazon.com. The difference is that when you shop on AmazonSmile, the AmazonSmile Foundation will donate 0.5% of the purchase price of eligible products to the Spastic Paraplegia Foundation, Inc. http://bit.ly/smileSPF
How can I get involved? What resources are available? All your key questions about #HSPandPLS answered by clicking here. Direct people to link: SP-Foundation.org