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How to Host a Local Event

Individuals are welcome (and needed!) to organize local Connections that may include a fundraising initiative. We can provide ideas, guidance and support in organizing your special event.

Making Connections

Connections are special events that bring our community members together to share stories, resources, treatment programs and concerns as well as learn about treatment therapies and research. Connections can range from small, casual get-togethers to formal events with one or more featured programs or speakers. The type of Connection depends upon the Connection organizer’s interests, abilities and geographic location (i.e., how many other community members are in the organizer’s area).

The Connections Resource Book provides suggestions to help you in organizing and hosting a successful Connection.

Event Ideas

Here are some ideas that could be used to help raise funds for research:

  • GET AN A-THON GOING ON
    GET AN A-THON GOING ON

    Bike-a-thon, roll-a-thon, dance-a-thon, walk-a-thon or similar activity

  • RESTAURANT PROMOTION
    RESTAURANT PROMOTION

    Restaurant Promotion, where a restaurant donates a portion of sales on aparticular date. Or try a Coupon Booklet Promotion – some restaurants or grocery store chains offer coupon books.

  • SOCIAL GET TOGETHERS
    SOCIAL GET TOGETHERS

    Social – a barbecue, picnic, breakfast, or dinner. Sell tickets for the meal that will also include a donation. You can add a raffle or auction to raise additional funds.

  • “PARTY PLAN” EVENTS
    “PARTY PLAN” EVENTS

    Hold a “party plan” event with a direct-selling company willing to donate a percentage of the proceeds (Tupperware, Pampered Chef and Avon are popular choices).

  • POPULAR EVENTS
    POPULAR EVENTS

    Bake Sale, Car Wash, Rummage or Yard Sale, or Gift Wrapping Table

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How to Help

Giving Tuesday is Right Around the Corner

Giving Tuesday, the first Tuesday after Thanksgiving, is December 3rd of this year. It comes after Black Friday and Cyber Monday and has been an ever growing favorite time of the year for charity giving. Last year, over $380 Million Dollars was raised for charities nationwide on Giving Tuesday, that were comprised of 3.6 million gifts, the average being $105.55. Facebook alone raised $120 million last year so that means they were about 31% of the total.

Our Giving Tuesday donations for the past 3 years were $9,237.05 in 2016, $18,800.00 in 2017 and $49,833.00 in 2018. We need to maintain this growth because it means so much to our mission of discovering a cure or treatment for both HSP and PLS. You will hear more on our Facebook page and email blasts. Please don't be shy! Be sure to let your friends and family be a part of this wonderful cause!

Join Us and Stay Informed

When Clinical Trials begin in 2019 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.

Find out more.

An Organization You Can Trust

87 cents of every dollar you donate goes into our mission of research and service. 7 cents goes to fundraising and 6 cents goes to data management and general expenses. Our all volunteer Scientific Advisory Board makes sure that we are supporting only the very best research projects on the planet.  The Spastic Paraplegia Foundation is an all volunteer run foundation. Our highly skilled staff, Scientific Advisory Board, Medical Advisors, CPA, Attorney, President,  Board Members - all of us are working hard every day probono because we strongly believe in this cause. We know a cure is right within reach and we ask you to please join us in reaching by making a tax deductible donation.

Donate now.