Upcoming Events (See Recent Events Below)

Date & Details - Click the links below.

Saturday, August 31, 2019
12:00 pm CDT2:00 pm CDT
La Margarita Restaurant 1530 N I-35 (on Access Road) Round Rock, TX 78681 512-388-1103

Every First Tuesday at 6:30pm EST
Telephone and Computer

Saturday, September 7, 2019
7:00 am4:00 pm
Drake Creek Golf Club Ledbetter,KY

Every First Tuesday at 6:30pm EST
Telephone and Computer

Saturday, October 5, 2019
11:00 am PDT4:00 pm PDT
Saint James' Episcopal Church, Fremont CA

Support Groups

  • Neurologic Disorders Support Group – Ann Arbor, MI

    First Tuesday of each month, 6:30pm-8:00pm

    The Neurologic Disorders Support Group Meetings are held on the first Tuesday of the month.

    Lower Level Conference Room B1 407B at the East Ann Arbor Health and Geriatrics Center (4260 Plymouth Rd, Ann Arbor, MI 48109). map and directions.

    If you have any questions, please contact Lynette Girbach at or by phone at (734) 936-3087.

  • MDA monthly Support Group – Nashville, TN

    First Tuesday of each month
    Contact Steve at (an SPF member who participates in the group)

  • AlphaOne Support Group – Bangor, ME

    Meeting the first Thursday of each month from 5:00pm – 7:00pm
    Meeting for people with spinal cord injuries and diseases. Always looking for speakers, and family & friends are also welcome!
    For questions, call (800) 300-6016.

  • Ataxia monthly Support Group – Norristown, PA (near Philadelphia)

    2nd Saturday of the month
    Mercy Suburban General Hospital. Organized by Liz Nussear, an SPF member. Contact

  • Ataxia quarterly Support Group – Charlotte, NC

    December, March, June and September
    Co-chaired by Cece Russell, a member of the SPF. Contact

  • Other Local Chapters

    Local chapters of these organizations often allow members of our community to attend their support groups. Please consider contacting them and let us know if you join one so we can add that group to the above list:

    ALS Association
    National Multiple Sclerosis Society
    National Spinal Cord Injury Association
    United Cerebral Palsy
    Ataxia Foundation

  • For Other Locations
  • Hosting Your Own Event

    Our Casual Connections are as easy as meeting for coffee or lunch. This offers opportunities to meet others, share knowledge, strategies, ideas, support, understanding, concerns, issues, solutions, research updates, tears, smiles and laughter.
    How to host your own rewarding event

Recent Events:

  • Central Texas Summer SPF Connection
    Central Texas Summer SPF Connection

    The CY2018 Austin Patient Connection was held Saturday, August 25, 2018 at a Texas Land and Cattle Restaurant, in Austin, Texas with eleven in attendance. Former attendees and new friends were made with sharing of experiences, information, and asking questions regarding Hereditary Spastic Paraplegia (HSP) and Primary Lateral Sclerosis (PLS).

  • Tina & Tim Croghan & Mary Schultz's 3rd Annual Trivia Night is a Huge Success
    Tina & Tim Croghan & Mary Schultz's 3rd Annual Trivia Night is a Huge Success

    SPF Missouri's third Annual SPF Trivia Night was held on Saturday, April 21st at Maryland Heights Community Center (St. Louis area). Everyone there enjoyed the trivia competition and bid on the many Silent Auction items donated to SPF.

    The evening began with a brief PSA video about SPF and then on to the ten rounds of trivia, with one dedicated to bringing awareness to the audience.

    The Trivia Night yielded over $5,000 for SPF. Now that is no trivial matter!