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For a full listing of patient organizations, go to http://bit.ly/NN-patientorganizations.

HELP FOR ALL NEUROLOGIC DISORDERS

American Academy of Neurology
http://patients.aan.com/
800-879-1960

American Brain Foundation
http://americanbrainfoundation.org/
866-770-7570

CaringBridge
Free, personalized websites to support your health journey
http://caringbridge.org/
651-452-7940

National Institute of Neurological Disorders and Stroke
http://ninds.org/
800-352-9424

Well Spouse Association
http://wellspouse.org/
800-838-0879

Here is the listing of patient organizations found at: http://bit.ly/NN-patientorganizations.

ALZHEIMER'S DISEASE

Alzheimer's Association
http://alz.org
800-272-3900

Alzheimer's Disease Education and Referral Center
http://nia.nih.gov/alzheimers
800-438-4380

Alzheimer's Foundation of America
http://alzfdn.org
866-232-8484

Association for Frontotemporal Degeneration
http://theaftd.org
866-507-7222

BRAIN TUMOR

American Brain Tumor Association
http://abta.org
773-577-8750 800-866-2282

Brain Tumor Foundation
http://braintumorfoundation.org
212-265-2401

Children's Brain Tumor Foundation
http://cbtf.org
866-228-4673

National Brain Tumor Society
http://braintumor.org
617-924-9997

Voices Against Brain Cancer
http://voicesagainstbraincancer.org
866-526-9255 212-340-1340

Accelerate Brain Cancer Cure (ABC2)
http://abc2.org
202-419-3140

CEREBRAL PALSY

United Cerebral Palsy
http://ucp.org
800-872-5827

CHIARI MALFORMATION AND SYRINGOMYELIA

American Syringomyelia and Chiari Alliance Project
http://asap.org
903-236-7079 800-ASAP-282 (272-7282)

Chiari and Syringomyelia Foundation
http://csfinfo.org
718-966-2593

EPILEPSY AND SEIZURES

Citizens United for Research in Epilepsy (CURE)
http://CUREepilepsy.org
312-255-1801

Epilepsy Foundation
http://epilepsyfoundation.org
800-332-1000

HUNTINGTON'S DISEASE

Hereditary Disease Foundation
http://hdfoundation.org
212-928-2121

Huntington's Disease Society of America
http://hdsa.org
800-345-HDSA (800-345-4372)

MULTIPLE SCLEROSIS

MSWorld
http://msworld.org

Multiple Sclerosis Association of America
http://msassociation.org
800-532-7667

Multiple Sclerosis Foundation
http://msfocus.org
800-225-6495

Myelin Repair Foundation
http://myelinrepair.org
408-871-2410

National Multiple Sclerosis Society
http://nationalmssociety.org
800-FIGHT-MS (800-344-4867)

MYASTHENIA GRAVIS

Myasthenia Gravis Foundation of America
http://myasthenia.org
800-541-5454

Myasthenia Gravis Foundation of Illinois
http://myastheniagravis.org
800-888-6208

Myasthenia Gravis Foundation of California
http://myasthenia-ca.org or info@myasthenia-ca.org
323-887-0056 800-574-7884

NEUROMUSCULAR DISEASES

ALS Association
http://alsa.org
800-782-4747

Charcot-Marie-Tooth Association
http://cmtausa.org
610-499-9264 800-606-CMTA (2682)

Kennedy's Disease Association
http://kennedysdisease.org
559-658-5950

Moebius Syndrome Foundation
http://moebiussyndrome.com
660-834-3406 844-663-2487

Muscular Dystrophy Association
http://mda.org
800-572-1717

The Foundation for Peripheral Neuropathy
http://foundationforpn.org
877-883-9942

Spastic Paraplegia Foundation, Inc.
http://sp-foundation.org
877-773-4483

PARKINSON'S DISEASE & MOVEMENT DISORDERS

American Parkinson Disease Association
http://apdaparkinson.org
800-223-2732

Foundation for PSP, CBD and Related Brain Diseases
http://curepsp.org
800-457-4777

International Essential Tremor Foundation
http://essentialtremor.org
888-387-3667

The Michael J. Fox Foundation for Parkinson's Research
http://michaeljfox.org
800-708-7644

How Does CBD Oil Affect Parkinson's Disease

Lewy Body Dementia Association
http://lbda.org
404-935-6444

National Parkinson Foundation
http://parkinson.org
800-473-4636

Parkinson's Disease Foundation
http://pdf.org
800-457-6676

The Parkinson's Institute and Clinical Center
http://thepi.org
800-655-2273

Tremor Action Network
http://tremoraction.org
510-681-6565

POST-POLIO SYNDROME

Post-polio Health International
http://post-polio.org
314-534-0475

RARE DISESES

Adult Polyglucosan Body Disease Research Foundation
http://apbdrf.org
646-580-5610

Global Genes Project
http://globalgenes.org
949-248-7273

The National Institutes of Health Genetic and Rare Diseases Information Center
http://rarediseases.info.nih.gov
301-251-4925 888-205-2311

National Organization for Rare Disorders
http://rarediseases.org
203-744-0100 800-999-NORD (6673)

STROKE

American Stroke Association: A Division of American Heart Association
http://strokeassociation.org
888-4STROKE (478-7653)

National Stroke Association
http://stroke.org
800-STROKES (787-6537)

TRAUMATIC BRAIN INJURY

Brain Injury Association of America
http://biausa.org
800-444-6443

TRIGEMINAL NEURALGIA

The Facial Pain Association
http://fpa-support.org
800-923-3608

Living with TN
http://livingwithtn.org

Resources

Giving Tuesday is Right Around the Corner

Giving Tuesday, the first Tuesday after Thanksgiving, is December 3rd of this year. It comes after Black Friday and Cyber Monday and has been an ever growing favorite time of the year for charity giving. Last year, over $380 Million Dollars was raised for charities nationwide on Giving Tuesday, that were comprised of 3.6 million gifts, the average being $105.55. Facebook alone raised $120 million last year so that means they were about 31% of the total.

Our Giving Tuesday donations for the past 3 years were $9,237.05 in 2016, $18,800.00 in 2017 and $49,833.00 in 2018. We need to maintain this growth because it means so much to our mission of discovering a cure or treatment for both HSP and PLS. You will hear more on our Facebook page and email blasts. Please don't be shy! Be sure to let your friends and family be a part of this wonderful cause!

Join Us and Stay Informed

When Clinical Trials begin in 2019 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.

Find out more.

An Organization You Can Trust

87 cents of every dollar you donate goes into our mission of research and service. 7 cents goes to fundraising and 6 cents goes to data management and general expenses. Our all volunteer Scientific Advisory Board makes sure that we are supporting only the very best research projects on the planet.  The Spastic Paraplegia Foundation is an all volunteer run foundation. Our highly skilled staff, Scientific Advisory Board, Medical Advisors, CPA, Attorney, President,  Board Members - all of us are working hard every day probono because we strongly believe in this cause. We know a cure is right within reach and we ask you to please join us in reaching by making a tax deductible donation.

Donate now.