SPASTIC PARAPLEGIA FOUNDATION
1605 Goularte Place
Fremont, CA 94539-7241
© Spastic Paraplegia Foundation

Self Help Guides


Note: Special thanks go to the many caring contributors, to Cheryl Schumer, the founder of the first HSP website, and to Thurza Campbell, who created and edited Synapse Newsletter. These great authors have provided us permission to re-print some of their articles. Some articles edited to fit space.

John K. Fink, M.D., SPF Medical Advisor

  • Spoon Theory
    Spoon Theory

    The ‘spoon theory’ is a visual metaphor to explain the amount of energy a person has throughout the day. We start the day with the same
    number of teaspoons. Every activity uses up a given number of spoons. For a healthy person, showering may use 1 spoon, but for a person with HSP or PLS, it may take 3 or 4 spoons. A person who runs out of spoons must rest until their spoons are replenished.



Gene Testing & Genetics

Home and Parenting


Living with HSP & PLS


Medical & Therapy


Mobility Aids



Social Security

Speech, Bulbar

Stretching, Exercises

Travel