The Spastic Paraplegia Foundation, Inc. (SPF) is the only organization in the Americas dedicated to finding a cure for two rare diseases, Hereditary Spastic Paraplegia (HSP) and Primary Lateral Sclerosis (PLS). We are a not-for-profit all volunteer organization.
Our primary goal has been to raise money to find a cure for HSP and PLS. Since our creation in 2002, we have raised and funded over $10 million in research grants. We have little overhead and last year 93% of the donations we received went towards research grants.
Frank Davis is now serving on the board as President Emeritus
Greg Pruitt is now the President and has been a member of the board of directors since 2014. His wife Norma has been the coordinator of the annual conference since 2016.
Currently, the Spastic Paraplegia Foundation Board consists of 5 office holders and 8 members that include doctors, and individuals living with HSP and PLS. All members are volunteers. The photo above was taken from the 2019 annual conference. The four inserts are members not present for the photograph.
SPF is committed to providing information about for these disorders, creating opportunities for mutual support and sharing, and discovering the cures for HSP and PLS by funding research.