Skip to main content

Annual Conference

2024 Annual Conference

2024 SP-Foundation Annual Conference Registration is Open June 21-23, 2024

The Spastic Paraplegia Foundation invites you to the 21st Annual Conference to learn, share, network, spark collaboration, and have fun!  Mark your calendars to join us beginning at 8:am Friday, June 21ST ending at Noon Sunday, June 23rd, 2024.

Below are instructions to register for the conference, weblink to the hotel to book a room, and a number to call for accessible transportation.  The 2024 agenda will be a little different schedule than previous conferences, and is subject to slight changes based on speaker preferences and availability. However, the dates will not change. Please check back on this page as details are finalized, where we will provide the final agenda.


Any questions, please email us at or call 877-773-4483


The SP-Foundation sponsors an annual conference bringing together leading doctors, scientists, researchers, clinicians, and families living with #HSPandPLS. SPF has hosted an annual conference since 2003. We look forward to uniting as a community supporting, strengthening, and learning about the latest advances in research and care, and most importantly helping the professionals see all of us together in various stages of disease progression.

Conference Fees are charged to cover the costs of the conference, including but limited to meals, breaks, room rental, audio-video equipment, videographers, and other expenses to conduct the conference. The fees charged per registrant do not actually cover all the expenses; and therefore, SP-Foundation must sponsor the balance from donations received from fundraising.  If you, your family, or your guests are attending the conference each person must register and pay the appropriate rate, so we may plan accordingly.  

The event is filled with a variety of workshops, general sessions with leading researchers, and more—plus informative events like our meet & greets with patients, investigators, and physicians. There are many opportunities to connect and interact with other SP-Foundation families and receive updates from doctors. We try to make accommodations for people with food allergies, other allergies, and try to keep the space safe for attendees.  Please make note of any allergies on the registration form and make sure to remind the hotel staff when you are being served.

A VIRTUAL OPTION is also available for those that cannot attend in-person. Please watch our Spastic Paraplegia Foundation YouTube Channel to view the 2023 Annual Conference

$150 - VIRTUAL REGISTRATION ONLY - Payment must be received by June 1, 2024
A non-shareable link will be emailed a few days prior to the Annual Conference. Please provide a complete, valid email address on the registration form or email after you make your online payment.

Early Discount—Payment must be received by March 8, 2024
$200 - 1st Adult Conference Fee Early Discount
$140 - 2nd+ Adult Conference Fee Early Discount
$100 - Child (under age 18) Early Discount

Payment must be received between March 9 til May 23, 2024
$250 - 1st Adult Registration March 9th to May 23rd   
$200 - 2nd+ Adult Conference Fee Early Discount March 9th to May 23rd  
$100 - Child Registration March 9th to May 23rd   

Onsite Registration
$300 - 1st Adult Registration May 24th to Onsite 
$280 - 2nd+ Adult Registration May 24th to Onsite  
$100 - Child Registration May 24th to Onsite  

(1) REGISTER online for the 2024 SPF Annual Conference in Tampa, Florida:  Click Here for IN-PERSON or VIRTUAL.  After you REGISTER click here to  PAY  the appropriate registration fees by credit card.
(2) Print the Registration Form (click image below), Complete Form, Make Check Payable: SP-Foundation, then Mail Payment & Form To: SPF, 6952 Clayborne Drive, O’Fallon, MO 63368-6202

SPF intends to share Contact Information with other registrants unless otherwise requested in writing to be omitted. Submit an email to if you do not want your name/city,state/email shared to other conference attendees

2024 Annual Conference Agenda 
Tentative Agenda (Subject to Change)

June 20, Thursday
Board of Directors Mtg

June 21, Friday
7:00AM Breakfast (On Your Own)
8:00AM Welcome
9:00AM General Session or Breakouts
10:00AM General Session or Breakouts
12:00Noon Lunch, plated (Provided)
1:30PM General Session or Breakouts
3:00PM General Session or Breakouts
5:30PM Reception
7:00PM Dinner (On Your Own) |

June 22, Saturday 
7:00AM Breakfast (On Your Own)
8:00AM General Session or Breakouts
12:00Noon Lunch, plated (Provided)
1:30PM General Session or Breakouts
6:30PM Dinner plated (Provided)

June 23, Sunday
8:00AM Coffee & Pastries (Provided) General Session or Breakouts
10:30AM— Dr John Fink
12:00Noon—Adjourn, Lunch (On Your Own)


The 20243 Annual Conference will be held at the:

Renaissance Tampa International Plaza Hotel
4200 Jim Walter Boulevard | Tampa, FL 33607 
Phone: (813) 313-3289


Mention “SPF/SPASTIC PARAPLEGIA” to be included in the room block for discounted room rate per night of $185 +applicable fees and taxes.
Check-In 4:pm/Check-Out Noon, Eastern Time Zone

Click here to use hotel link to book your                                     
HOTEL RESERVATIONS or call 813-877-9200

Guest Room Booking Website:

Please note all ADA Rooms have been reserved for our attendees but may be sold-out prior to your reservation. 

SPF Hotel Guests receive free Wi-Fi and free self-parking. Available onsite is a restaurant, bar, pool, fitness center, and the hotel is adjacent to the Tampa International Mall ( Renaissance website:,

Hotel is located about 4-miles, or 7-minutes, from Tampa International Airport (TPA),  Airport Street Address: 4160 George J. Bean Parkway, Tampa, FL 33607, Airport Telephone: If it is after 5pm, M-F or anytime Saturday and Sunday and you need immediate assistance, please contact the Airport Operations Center at (813) 870-8770

Go to the airport-baggage-claim area to obtain shuttles. No appointment is necessary to transport to the hotel by shuttle. The Renaissance Hotel does not have an accessible shuttle but runs FREE Shuttles from 5am to 11pm.  The AC Hotel has an Accessible FREE Shuttle available for SPF attendees found in the airport-baggage-claim area.  AC Hotel is a neighboring hotel.  Accessible appointments are only necessary to be dropped off at the airport by calling 813-350-4020.

(1) The hotel is adjacent to International Plaza Mall—enjoy dining and the nightlife on Bay Street, a vibrant outdoor village filled with an exciting collection of restaurants and many shopping opportunities —
(2) Just minutes from downtown Tampa Bay, Raymond James Stadium, historic Ybor City, and the Westshore business district.
(3) Close to Busch Gardens, Zoo Tampa, Tampa Aquarium, the beach, the bay, lots of restaurants, waterfronts, and cool things to see and do!

IMAGE CONSENT POLICY: By completing & submitting the Registration Form you acknowledge providing consent to use your image captured during the conference through live-video, photographs, or digital imagery, to be used by SPF in promotional materials, publications, and website and waive any and all rights to these images, unless otherwise revoked in writing to prior to the conference.

FILMING/RECORDING POLICY: Attendees at the annual conference expect, and deserve, the right to privacy. Recording of any audio/or videotaping of conference sessions or at any venue of the annual conference is prohibited, without prior written approval by the SPF. Conference presentations will be available after the conference on the website. SPF will photograph and record the annual conference and will make photographs and other media available for news, educational, and promotional purposes as appropriately deemed by SPF.

SOLICITATION POLICY: Soliciting funds for organizations, or for individual benefit, other than donations directed to the Spastic Paraplegia Foundation are prohibited at SPF events. Any people or materials soliciting funds for other organizations or for individual benefit will be removed or asked to leave the conference.

Important Dates:

12/01/2023 - Registration Scholarship Application Open

12/01/2023 - Registration Annual Conference Open

02/10/2024 - Last Day – Conference Scholarship Applications

02/17/2024 - Notification of Scholarship Awards

03/08/2024 - Last Day - Early Bird Registration Pricing

05/23/2024 - Last Day - Advance Registration

05/23/2024 - Last Day – HOTEL BLOCK ENDS

05/31/2024 – Last Day – Request Refund Registration Fee In Writing

Click the image below to print a registration form

Thank you to our generous sponsors.