Awareness Week

August 18-22 & 27, 2025

This year's Awareness Week includes an SPF Talks with Sabrina Paganoni on Monday, August 18th. This SPF Talks has a DIFFERENT Zoom link. To see more information on that SPF Talks CLICK HERE

To register for ALL Awareness Week activities click the button below. Note once you register, you can use the SAME invitation link on each day.

Monday, August 18 | 12:30 PM CT

SPF TALKS: Dr. Sabrina Paganoni
Discover how clinical research in ALS may accelerate breakthroughs for HSP and PLS. 

Kick off Awareness Week with world-renowned neurologist Dr. Sabrina Paganoni, co-director of the Healey ALS Platform Trial at Mass General, as she joins SPF TALKS to share insights into cutting-edge neurodegenerative research. Don’t miss this powerful discussion on how collaborative science may hold promise for HSP and PLS. 

Register here: https://us02web.zoom.us/meeting/register/LwSMCJCFS0S2yZzZpzyBeg#/registration

#spftalks #hspandpls #championcures #motorneurondiseases #gratitudeinaction #SPFgratitudeinaction #movementdisorders #curehspandpls

Tuesday, August 19 | 7:00 PM CT
5K & Other Events Awareness Challenge
Walk, roll, run—or cheer others on! Let’s get moving and share how we support the mission. 

Get your sneakers ready!  Join us for a community celebration of movement, resilience, and advocacy. Whether you're walking, wheeling, or cheering, this 5K Awareness Event connects us across the miles—and brings us one step closer to cures.

Register here: https://us02web.zoom.us/meeting/register/VjCoQJLdThiuf6CgCBgHjQ

#hspandpls #spf5k #spftalks #gratitudeinaction  #bethechangeyouwanttoseeintheworld 
#championcures #curespg #chronicillness
#spftalks

Wednesday, August 20 | 2:00 PM CT
Hippotherapy & Motor Function
A powerful session with Ruth Dismuke-Blakely on how equine-assisted therapy benefits individuals with mobility challenges.

Discover the healing power of horses. Join leading expert Ruth Dismuke-Blakely as she shares how Hippotherapy can support individuals with HSP and PLS—improving balance, coordination, strength, and emotional wellness. A moving session you won’t want to miss. 

Register here: https://us02web.zoom.us/meeting/register/VjCoQJLdThiuf6CgCBgHjQ

#spftalks #hippotherapy #hspandpls #chronicdisease #movementdisorders #SPFgratitudeinaction #curehspandpls #championcures  #spasticparaplegiafoundation 

Thursday, August 21 | 7:00 PM CT
SPF & Annual Conference Update
Hear what’s ahead for the 22nd Annual Conference in D.C., plus exciting research and advocacy updates.

Big things are happening! Join us for an insider’s update on the 22nd Annual SPF Conference, including highlights from our speaker lineup, key research topics, and what to expect in Washington, D.C. this October.

Register here: https://us02web.zoom.us/meeting/register/VjCoQJLdThiuf6CgCBgHjQ

 #spftalks #spfconference2025 #hspandpls #championcures #curehspandpls #spasticparaplegiafoundation #movementdisorders #SPFgratitudeinaction

Friday, August 22 | 7:00 PM CT
Open Forum
An honest, welcoming conversation—your voice matters.

This one’s for you. Join the SPF community for an open, supportive conversation to share experiences, ask questions, and connect with others living with or caring for someone with HSP or PLS. Everyone is welcome.

Register here: https://us02web.zoom.us/meeting/register/VjCoQJLdThiuf6CgCBgHjQ

#spftalks #hspandplsawareness #movementdisorders #curehspandpls #chronicillness #SPFgratitudeinaction  #spasticparaplegiafoundation 

Note: Time changed to 11 am 

Wednesday, August 27 | 11 AM CT
USA HSP/PLS Day Celebration
Join us for this special gathering of hope, unity, and determination from coast to coast.

Raise your voice! On USA HSP/PLS Day, we celebrate the strength of our community and spotlight our urgent mission to accelerate treatments and cures. Tune in for a powerful midweek rally and learn how you can make an impact!

Register here: https://us02web.zoom.us/meeting/register/VjCoQJLdThiuf6CgCBgHjQ

#hspandpls #championcures #spftalks #movementdisorders #motorneurondiseases #curehspandpls #SPFgratitudeinaction #bethechangeyouwanttoseeintheworld
#spasticparaplegiafoundation #spasticparaplegiaworld #spasticworld