Welcome to the Spastic Paraplegia Foundation Website
The Get Involved section is probably the most frequented part of the website. ‘Donate Here’ helps raise money for SPF. The primary goal of SPF is to raise money to find a cure and 97% of donations go toward funding research. There are many ways to donate: or other ways like Planned Giving, creating a fundraiser to get family and friends involved and more.
There are in-person and virtual ways to participate under ‘Events’ which are in an Events Calendar There are also yearly events: Annual Conference, Awareness Week, and more. There is also a ‘SPF Store’ there are lots of different items you can purchase to show your support for HSP, PLS or SPF..
Under ‘Ambassadors’, you can volunteer to help others with HSP or PLS. There is information on ‘Support Groups’ and ‘How to Help’. Plus, you can 'Volunteer on a Committee', find information on ‘SPF Kids & Youth’, or ‘SPF Talks’ which discusses a variety of topics of interest over Zoom.
The section called Resources contains a great deal of useful information. Here you can 'Register/Update' with SPF. There are informational booklets on HSP & PLS which can be printed and given to family members to help them better understand your situation and a glossary of medical terms. Under 'Directories', you can contact an Ambassador or see lists of Physician/Clinics and Physical Therapists. You will also find information on our 'Newsletters' (Synapse and Spastic World), 'Self Help Guides', and 'Government Aid & Charity Programs',
Research contains current and past ‘Research Grants’ that the SPF has funded with donations, 'Current Studies Seeking Participants', , ‘SP-COE’ (Spastic Paraplegia – Centers of Excellence) which is the most exciting and newest step forward for HSP/PLS, plus ' and 'International Organizations', Patient Registry information, and a section for investigators to submit a research proposal..
If there is still something you'd like to find just type it in the SEARCH area on the top of all pages. Also don't forget to visit our social media pages, especially our YouTube channel. We have preserved most of the SPF's presentations from world renowned physicians. The social media icons appear at the bottom of the webpage.
You are no longer alone in this fight!