We have opportunities for you to provide your input on one of our committees. You may have professional expertise or just an interest in Marketing, Fundraising, Education and Ambassadors, Advocacy, or SPF Kids.
The following pages explain what each committee does. If you have an interest in any one of them, you can email us HERE
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The main goal of the Education and Ambassador Committee is to spread awareness and educate everyone of our rare diseases. We also review the website and keep it current. We are looking for anyone to help with new ideas that will help our cause. We meet via Zoom on the third Wednesday of the month at 7:00pm CST. If you would like to serve on the Education and Ambassador Committee or would like to provide ideas or feedback, please contact Dina Landphair. Dina.Landphair@sp-foundation.org
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The main goal of the Fundraising Committee is to raise money for research to find a cure of our rare diseases. We are looking for individuals that can help provide new ideas for fundraising or provide feedback. Fundraising committee members are not required to reach out to others for additional contributions. We meet via Zoom on the third Tuesday of the month at 7:00pm CST. If you would like to serve on the Fundraising Committee or would like to provide ideas or feedback, please contact Jim Sheorn. fundraisingforspf@gmail.com
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The main goal of the Marketing Committee is to promote our rare disease by raising awareness. Are you an individual with a marketing or sales background? We meet via Zoom on the last Tuesday of the month at 7:00pm CST. If you would like to serve on the Fundraising Committee or would like to provide ideas or feedback, please contact Tim Croghan. audmanager@yahoo.com
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The Advocacy committee seeks to spread awareness of our diseases through social media, press and TV media, and State and Federal legislators. We meet via Zoom on the last Thursday of the month at 7:00pm CST
Contact us at Volunteer@sp-foundation.org -
This is a new committee looking for volunteers to support our young with HSP.
Contact us at Volunteer@sp-foundation.org
