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Volunteer on a Committee

SPF is always looking for people to Volunteer on a Committee: Education & Ambassadors, Fundraising, Marketing and Technology.

Do you have experience in these areas?

  • The main goal of the Education and Ambassador Committee is to spread awareness and educate everyone of our rare diseases. We also review the website and keep it current. We are looking for anyone to help with new ideas that will help our cause. We meet via Zoom on the third Wednesday of the month at 7:00pm CST. If you would like to serve on the Education and Ambassador Committee or would like to provide ideas or feedback, please contact Dina Landphair.

  • The main goal of the Fundraising Committee is to raise money for research to find a cure of our rare diseases. We are looking for individuals that can help provide new ideas for fundraising or provide feedback. Fundraising committee members are not required to reach out to others for additional contributions. We meet via Zoom on the third Tuesday of the month at 7:00pm CST. If you would like to serve on the Fundraising Committee or would like to provide ideas or feedback, please contact Jim Sheorn.

  • The main goal of the Marketing Committee is to promote our rare disease by raising awareness. Are you an individual with a marketing or sales background? We meet via Zoom on the last Tuesday of the month at 7:00pm CST. If you would like to serve on the Fundraising Committee or would like to provide ideas or feedback, please contact Tim Croghan.

  • The main goal of the Technology Committee is to support all of the other committees and website. We don't have an office. Our needs are software oriented and primarly ideas for social media, events and webinars. We meet via Zoom on the fourth Wednesday of the month at 7:00pm CST. If you would like to serve on the Tech Committee or would like to provide ideas or feedback, please contact Hank Chiuppi.