Local Events and Fundraisers

OUR HEROS

Local Events and Fundraisers

Join us in supporting the Spastic Paraplegia Foundation, a beacon of hope for those living with this rare neurological condition. Our fundraisers bring together communities, organizations, and individuals who share a common goal: to improve the lives of those affected by spastic paraplegia. By having your own events, you are not only raising awareness but also providing crucial funding for research, education, and support services. Your contribution can make a significant impact on the lives of individuals and families facing the challenges of spastic paraplegia. It doesn't matter how big or small, every amount helps. Let's come together to make a difference and create a brighter future for all those touched by spastic paraplegia. 

Thank you for your support, and let's continue to make a positive impact through our fundraising efforts.

2024 Fundraisers and Events

Here are just a few fundraisers from this year so far: 

Top Teams 
FL Ambassadors $15, 239 
Sue & Ed Duffy ($9,600), Tracy & Ron Hood ($5,214), Christine & Andrew Hendrickson ($425)

SPF NJ Ambassadors $14,578 
Christopher Falconer, Brittany Kassaba ($2,150) & Sheila Eby

TX Team HSP & PLS $6,295 
Elsa Guterriez ($4,012), Kim White, Dr. Tess Bobo ($1.250), Celyna Rackov, Jeanna Frazer, Rayhan Syeda & Tina Curfman

Julie & Bob Conlin $3,625

Tim & Tina Croghan $2,600

Top Individuals 
1st place - Tami Moynihan $20,565 
     She coordinated a 5K, a golf tournament, a poker night and a private dinner to generate her total amount.

2nd place -Kelle Hampton $10,465

3rd place - Zona Reid $7,220

Nick Perrino $2,725 
Becki Cochran $2,260 
Jim Sheorn $2,095 
Mary Schultz $1,725 
Hank Chiuppi $1,506 
Gretchen Sprouse $1,220 
Zack Anderson $1,075

Moynihan Family

Our family has started getting involved in raising awareness and funds for the SP Foundation in the past few years since Maddon’s diagnosis. We have found this to be a really positive way to do something productive as a family given the reality of the situation. We’ve had tons of fun putting on these events including raffles at the local pizza restaurant, golf and poker tournaments and a private wine tasting dinner. We are hopeful that with continued awareness and fundraising there will be a cure for Maddon.

Texas Team HSP & PLS

We are thrilled to share the success of our recent 5K fundraiser, which took place on Sunday, October 13 at The Tobin Park in San Antonio, Texas. With the support of our generous participants, volunteers, and sponsors, we raised over $6,000 to benefit the SP Foundation. The event saw a wonderful turnout of runners, walkers, rollers, and supporters of all ages, united by the common goal of making a difference. Whether participants aimed to achieve a personal best or simply enjoy a day of fun and fitness, the spirit of the day was truly inspiring. We extend a heartfelt thanks to everyone who contributed, from the volunteers who dedicated their time and effort, our family and friends, who donated so generously, to the local businesses, Hassinger Hair Salon and The Vision Source of Alamo Heights and McAuthur Park who sponsored the event. Your involvement not only made the 5K possible but also amplified the impact on the SP Foundation. The following San Antonio, SP members were present for the 5K: Tess Bobo and her family and friends, JTaylor Gutierrez and his family and friends, and Rayhan Syeda and his family. Together, we’ve shown the strength of our community when we come together for a worthy cause. We look forward to making next year’s event even bigger and better. Thank you again for your incredible support.

Hendrickson's from Florida

Christine & Andrew recently held their 5K event. During it, a stranger asked what they were doing. Christine gave them a brochure and explained. They gave her a contribution.

Adli Hagen from Iowa

Adli Hagen did a push up challenge to raise money for SPF. She did 50 push ups each day during August and raised $2000.

Sheila Eby from New Jersey

Sheila Eby recently swam 63 laps in the pool. Equivalent to one mile. She is part of the NJ Ambassador team.

Christopher Falconer from New Jersey

Christopher Falconer road 60 miles on his Peloton bike in one month for SPF. He is part of the NJ Ambassador team. 

Nick Perrino Family

Nick Perrino coordinated his family's 5K.

Molly Sultan/St James from Florida

Molly donated the from selling button ornaments at a craft fair.

Peter Landry from North Carolina

Peter Landry and his friend Kim Nichols just completed another 5K event at the Row House in Denver, NC. They rowed their way to a 5K.

2023 Fundraisers and Events

Celyna Káritas Rackov from Texas

Celyna Káritas Rackov played golf as part of her 5K Run, Walk or Roll

Julie & Bob Conlin from Michigan

Julie & Bob Conlin completed 100 milesfor their 5K Run, Walk or Roll. 

Brittany Kasaba from New Jersey

Brittany Kasaba and her son rode over 12 miles together yesterday on their bikes for their 5K event

Tami Moynihan from Washington

Tami Moynihan is our Top individual participant raising $9,035 for her 5k Run Walk or Roll.

Bob and Julie Conlin from Michigan

Bob and Julie Conlin reached their goal of raising $10,000 and ran & rolled 111 miles in July. 

Tracy and Ron Hood from Florida

Tracy and Ron Hood held their SPF 5K Run, Walk or Roll. Had about 30 people and so far have raised $5,000. Christine and Andrew Hendrickson joined them.

The Gutierrez family from Texas

The Gutierrez family hosted their 2nd annual SPF 5K Run, Walk or Roll on Oct 15th with over 75 participants. Two participants, Francesca Harris and J. Taylor Gutierrez have HSP. Lots of fun and excitement as you can tell by the photos.

Past Events