The day when all individuals with HSP or PLS are diagnosed, treated and cured.
Welcome to SPF - (See News & Announcements Below)
HSP and PLS are neurological disorders affecting the voluntary muscles. The disorders are progressive and may lead to patients being unable to walk, and more. The Spastic Paraplegia Foundation is dedicated to advancing research and finding the cures for two groups of closely related, progressive neurological disorders: Primary Lateral Sclerosis (PLS) and Hereditary Spastic Paraplegia (HSP).
Our process is simple, time consuming, but effective. We work with a world renowned group of scientists that are all experts in the field of neurological disorders such as HSP and PLS. This group of scientists work with us on a volunteer basis, they live all over the world and we call them our Scientific Advisory Board (SAB). Every research proposal we receive is submitted to be reviewed, carefully analyzed and graded by at least 3 members of our SAB. Once or twice a year, our SPF Board of Directors goes to our SAB and asks them for their recommendations. The manager of our SAB, Dr. Martha Nance, collects, compares and contrasts all of the SAB reports regarding each research proposal and turns in their report card with recommendations to our Board of Directors. We almost always follow their recommendations to support the very best HSP and PLS research in the world. The sad part of this process is that our SAB, in recent years, has graded several more of these research proposals as blue ribbon excellent than we can afford to support. Your donations are greatly needed and will be used in the most cost efficient, effective method possible.
It is with much sadness to tell you that the June 2020 Annual Conference of the Spastic Paraplegia Foundation in Nashville TN is canceled. Our SPF Board of Directors has been forced to cancel the Conference out of concern and caution. Your hotel and registration fees are fully refundable. Please call the hotel to cancel your reservation. Our President personally sent a message to everyone that registered, so please check your emails. If you did not receive an email from Frank, please let us know! Hold on to the possibility of a Virtual Conference.
Become a part of a community that keeps you informed on the latest HSP & PLS News. When Clinical Trials begin in 2020 it may require as many people as possible for the Clinical Trial to be effective. If you have HSP or PLS, please add your information to our data base so we can keep you informed. We are missing a lot people's email address, so if you just want to add your email address. just enter your name, address and email and we'll add it. That way, we will be able to reach you quickly at a lower cost. Your privacy is very important to us. We will never share any of your information with any individual or company without your permission.
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87 cents of every dollar you donate goes into our mission of research and service. 7 cents goes to fundraising and 6 cents goes to data management and general expenses. Our all volunteer Scientific Advisory Board makes sure that we are supporting only the very best research projects on the planet. The Spastic Paraplegia Foundation is an all volunteer run foundation. Our highly skilled staff, Scientific Advisory Board, Medical Advisors, CPA, Attorney, President, Board Members - all of us are working hard every day probono because we strongly believe in this cause. We know a cure is right within reach and we ask you to please join us in reaching by making a tax deductible donation.
Please consider making a gift to The Spastic Paraplegia Foundation in your will and financial plan.
Mail your check donation to: Spastic Paraplegia Foundation - 1605 Goularte Place - Fremont CA 94539-7241 Ph: (877) 773-4483 Tax ID#: 04-3594491