SPASTIC PARAPLEGIA FOUNDATION
1605 Goularte Place
Fremont, CA 94539-7241
© Spastic Paraplegia Foundation

SPF Vision

The day when all individuals with HSP or PLS are diagnosed, treated and cured.


Help Us Fund Research for THE Cure

My name is Manuel By Cristina Di Maggio

I am from Argentina and I am 11 years old. Two years ago I was diagnosed with Hereditary Spastic Paraparesis. It is a disease that progressively affects the muscles of my legs with muscle spasms (spasticity). After genetic analysis, they determined that I have type SPG5A that affects 1 / 1,000,000 people. There is no cure, only kinesiological treatment and the help of drugs for spasticity (baclofen).
It is difficult to live with this disease as a child, you need a lot of family support and psychological help. Sometimes I get very angry, I can't understand how to play soccer and run like any child happens because I have pain, I fall and have clumsy movements. Currently, doctors and researchers in my country are looking for a drug that slows down and even stops the disease.
In my family, we have a lot of faith that this will be the case.
WITHOUT INVESTIGATION THERE IS NO KNOWLEDGE
WITHOUT KNOWLEDGE,
 THERE IS NO TREATMENT
WITHOUT TREATMENT THERE IS NO CURE.


Welcome to SPF

(See News & Announcements Below)

HSP and PLS are neurological disorders affecting the voluntary muscles. The disorders are progressive and may lead to patients being unable to walk, and more. The Spastic Paraplegia Foundation is dedicated to advancing research and finding the cures for two groups of closely related, progressive neurological disorders: Primary Lateral Sclerosis (PLS) and Hereditary Spastic Paraplegia (HSP).

Our process is simple, time consuming, but effective. We work with a world renowned group of scientists that are all experts in the field of neurological disorders such as HSP and PLS.  This group of scientists work with us on a volunteer basis, they live all over the world and we call them our Scientific Advisory Board (SAB). Every research proposal we receive is submitted to be reviewed, carefully analyzed and graded by at least 3 members of our SAB. Once or twice a year, our SPF Board of Directors goes to our SAB and asks them for their recommendations. The manager of our SAB, Dr. Martha Nance,  collects, compares and contrasts all of the SAB reports regarding each research proposal and turns in their report card with recommendations to our Board of Directors. We almost always follow their recommendations to support the very best HSP and PLS research in the world. The sad part of this process is that our SAB, in recent years, has graded several more of these research proposals as blue ribbon excellent than we can afford to support. Your donations are greatly needed and will be used in the most cost efficient, effective method possible. 


Spastic Paraplegia Foundation - 1605 Goularte Place - Fremont CA 94539-7241 Ph: (877) 773-4483 

We are a non-profit corporation under section 501(c)(3) of the U.S. Internal Revenue Code, EINTax ID#: 04-3594491


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