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SP-CERN Research

Research Goals

The initial phase of the SP-CERN aims to establish the center of excellence sites and organize national and international collaboration. The network will establish research infrastructure, will harmonize research protocols with international partners, connect patients and families affected by HSP/PLS, and build collaborations with partners in the biotechnology and pharmaceutical industry. The central infrastructure includes a prospective, longitudinal natural history study, a comprehensive repository of biospecimen and cell lines, and a state-of-the art genomics platform.


Our Impact since our inception...

  • Dollars Raised

    Over 11,000,000 dollars for research!

Thank you to our generous sponsors.