For Your Information

If you’re living with HSP (Hereditary Spastic Paraplegia) or PLS (Primary Lateral Sclerosis), you know that finding practical solutions and trustworthy advice can make a huge difference in daily life. The following items have all been recommended or personally tested by members of the spf community—people who truly understand what you’re going through. Whether it’s a clever tool, a comfort aid, or a resource that’s made things just a little easier, these suggestions come from real experience. While what works for one person might not work for everyone, we hope you find something here that helps, inspires, or simply makes your day a bit better.

Dnsys X1 Exoskeleton

Testimonial

I wanted to share information about a device that has been especially helpful for me: the Dnsys X1 Exoskeleton. It’s designed for people with balance and mobility challenges, and it offers significant walking support.  Understandably, Dnsys does not claim to be for anyone with disabilities - to avoid liabilities. 

The Dnsys has two general modes:  Resistance Mode – for athletic training, and Assistance Mode – for mobility support.  Within Assistance Mode, there are three levels: ECO, SPORT, and RUNNING. The unit uses AI to adapt continuously to your unique gait, helping to lift your legs and reduce effort with each step. What makes it especially user-friendly is how it redistributes weight to reduce strain on the hips—making longer walks more manageable and far less tiring. For example, I recently completed a 5-mile hike with much less fatigue than I would have experienced without the exo.  My husband was more tired than me!

If you stop walking, the unit gives a gentle "nudge" and then pauses. As soon as you resume walking, it picks right back up, continuing the leg-lifting assistance seamlessly. The battery lasts for up to 15 miles, and extra batteries are available if needed. Customer service is also very responsive—typically replying within a day or two, even though they’re based in China.