Ambassador Volunteer Information

Ambassadors raise awareness about our disorders as well as enhance community building and industry relationships. You can assist with media relations, share your story, speak at local groups, or help with grassroots advocacy.  

Ambassadors will receive information of new people in their area who join our community and send out "Welcome" emails to them. Depending upon the area, this may be 1-12 people over the course of a year.

Let people who live within reasonable proximity to one another know they are "neighbors" and encourage them to meet.

Send out periodic emails as needed to maintain the regional network.

Hold periodic group support meetings or more formal events

Try to get current contact information if the information provided on the original spreadsheet is incorrect. Report updated information to SPF database coordinators at volunteer@sp-foundation.org

Have an SPF disorder (HSP, SP, or PLS) or are related to someone who does.

Are people who seek to enhance the quality of life for individuals and bring energy and commitment to the program.

Are comfortable with email, internet searches and Excel and Word applications.

Can make a commitment of one year.

Will respect and maintain the confidentiality of our members and not share personal information outside of SPF initiatives. Additionally, Ambassadors will respect the desire of individuals who do not want any further contact.

Be a listener! Give suggestions and know who to contact for different requests. Be well versed in the SPF website. Visit it often to see what's new.

Be a liaison! Know whom to contact. And make sure to follow-up!

Be a conduit! Especially newly diagnosed people don’t know where to begin or what to ask. “Where do I start?”

Be an example! (Practice what you preach!) If you are recommending stretching or other forms of exercise, make sure you are doing it too.

Send out periodic emails. However often—you decide. Be excited! Send pictures and short videos. Share what’s happening with you.

Update your contact information at least once a year. Let SPF know of a change. It costs money, in returned postage, that could be spent on research.

Hold periodic group meetings. This can be formal (a connection with an agenda or speaker) or informal (a simple “let’s meet for coffee!”) as you like!

Participate in the monthly SPF Education Committee and Ambassador Meetings, held on the third Wednesdays of the month, from 7:00-9:00PM CST via Zoom.

Send a monthly email to members in your region with high level updates from the monthly education committee and ambassador meeting.

Stay connected to members in your region as a liaison and support member giving them info they may need to feel connected in the community.