Current Campaigns

EVERYONE is an Advocate

Your voice has the power to change lives. Right now, thousands of Americans living with Hereditary Spastic Paraplegia (HSP) and Primary Lateral Sclerosis (PLS) face daily battles not just with their conditions, but with a healthcare system that often overlooks rare diseases. By reaching out to your local legislators, you can help shine a light on these progressive neurological disorders that affect mobility, independence, and quality of life. Every email, phone call, and letter to your representatives adds momentum to our fight for better research funding, improved access to specialized care, and enhanced support services. While these conditions may be considered rare, the impact of your advocacy is profound – it can help shape policies that directly improve the lives of those affected by HSP and PLS. Don't wait for someone else to speak up. Your legislators need to hear your story, understand these conditions, and take action to support our community. Below, you'll find several campaigns where your voice can make a real difference.

Current Campaigns

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