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The SPF Community Comes Together for the 23rd HSP/PLS Annual Conference in St. Louis, June 15-17th!  LEARN MORE

World Day Symbol

Our symbol for 2025 is the interlocked finger gesture:


How to Add Your Photo to the Worldwide HSP Day Frame on Instagram

  • Step 1: Save the Frame
    Step 1: Save the Frame

    • Download/save the official HSP Day frame to your camera roll.

  • Step 2: Take Your Gesture Photo
    Step 2: Take Your Gesture Photo

    • Make the HSP gesture:

    • Chain link made of two finger loops

    • Take a photo of yourself (face optional) or just of the gesture.

  • Step 3: Open Instagram
    Step 3: Open Instagram

    • Tap the “+” symbol at the bottom center of the screen

    • Choose Story

  • Step 4: Add the Frame
    Step 4: Add the Frame

    • Tap the bottom-left preview to open your camera roll.

    • Select the HSP and PLS World Day frame.

  • Step 5: Add Your Photo on Top
    Step 5: Add Your Photo on Top

    • At the top of the screen, tap the square smiley icon.

    • Tap Photo.

    • Select your gesture photo.

    • It will appear on top of the frame.

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  • Step 6: Adjust & Publish
    Step 6: Adjust & Publish

    • Use two fingers to resize or move your photo until it fits.

    • When you’re happy, tap the arrow in the bottom-right corner to publish your Story.

Send Your Photo to the Spastic Paraplegia Foundation


In addition to posting on Instagram, please email your gesture photo to SPF.

**Important**  Name your file as: gesture.jpg

Together, we will show the strength of our worldwide HSP and PLS community.

With gratitude,
Spastic Paraplegia Foundation

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