Skip to main content

October 17: World HSP/PLS Day

How to Add Your Photo to the Worldwide HSP Day Frame on Instagram

Our symbol for 2025 is the interlocked finger gesture:

> Join the tips of your left thumb and pointer finger.

> Join the tips your right thumb and pointer finger.

> Interlock them like a chain link.


How to Add Your Photo to the Worldwide HSP Day Frame on Instagram

Step 1: Save the Frame

• Download/save the official HSP Day frame to your camera roll. 

Step 2: Take Your Gesture Photo

• Make the HSP gesture:

• Chain link made of two finger loops

• Take a photo of yourself (face optional) or just of the gesture.

 

Step 3: Open Instagram

• Tap the “+” symbol at the bottom center of the screen.

• Choose Story.

Step 4: Add the Frame

• Tap the bottom-left preview to open your camera roll.

• Select the HSP and PLS World Day frame.

Step 5: Add Your Photo on Top

• At the top of the screen, tap the square smiley icon.

• Tap Photo.

• Select your gesture photo.

• It will appear on top of the frame.

Step 6: Adjust & Publish

• Use two fingers to resize or move your photo until it fits.

• When you’re happy, tap the arrow in the bottom-right corner to publish your Story.


Send Your Photo to the Spastic Paraplegia Foundation

In addition to posting on Instagram, please email your gesture photo to SPF.

** Important**  Name your file as: gesture.jpg

Together, we will show the strength of our worldwide HSP and PLS community.

With gratitude,
Spastic Paraplegia Foundation


Our Impact since our inception...

  • Dollars Raised

    Over 12,000,000 dollars for research!

Thank you to our generous sponsors

MENU CLOSE