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The SPF Community Comes Together for the 23rd HSP/PLS Annual Conference in St. Louis, June 15-17th!  LEARN MORE

The Power of 12: You’ve Been Challenged

What if the cure for a rare disease started with just twelve people?

That’s the heart behind the Power of 12. Here’s how it works: you’re invited—no, challenged—to reach out to 12 friends. Ask each one to give $12 a month, for 12 months. That’s it. Simple numbers, but if you do the math, the impact multiplies fast.

But this isn’t just a fundraiser. It’s a movement. A way to turn small acts of generosity into a wave of hope for families living with rare diseases like Hereditary Spastic Paraplegia (HSP) and Primary Lateral Sclerosis (PLS). These aren’t conditions you see on billboards or in blockbuster charity campaigns. They’re quiet, devastating, and too often overlooked. But the need for research is urgent—and the chance to help is right in front of you.

So, you’ve been challenged. Be one of the twelve. Invite your friends to do the same. Together, you’ll create something that lasts—a movement fueled by hope, generosity, and the simple power of showing up for each other.

How It Works?

Here's how it works, plus a few tips to make things easier.

  • CAMPAIGN TIMELINE

    4 WEEKS

  • WEEK 0 – PRE-LAUNCH

    Goal: Build foundation and secure early change makers.

    • Identify 10–20 Change Makers (board, donors, ambassadors)
    • Prepare email templates and outreach lists
    • Begin personal outreach: I’d love for you to be one of our founding Power of 12 Change Makers
  • WEEK 1 – LAUNCH (You Have Been Challenged)

    Email #1 Subject: You’ve Been Challenged

    • Introduce the concept simply and personally
    • Call to Action: Accept the Challenge

    Social: 2–3 posts using campaign graphics
    Personal Outreach: I thought of you immediately for something special we’re launching…

  • WEEK 2 – MOMENTUM (This Is Working)

    Share early traction and participation numbers

    • Add light urgency and encouragement

    Social: Highlight participants and testimonials

  • WEEK 3 – EMOTIONAL CONNECTION (Why This Matters)
    • Share a compelling story
    • Reinforce mission, community, and impact
  • WEEK 4 – URGENCY PUSH (Last Chance to Join)
    • Create urgency and reinforce simplicity

    Social: Daily countdown posts

  • FINAL DAY – BIG PUSH
    • Share results and final participation numbers
    • Strong call to action to join before close

To Start: Click the Button or Scan the QR Code Below

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