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Ambassadors are volunteers committed to helping members of the Spastic Paraplegia Foundation (SPF) with whatever you need. It can be anything from finding a doctor to just someone to talk to. Ambassadors are available to help you connect with local resources and events in your area or nationally.
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The Neurological Disorders Support Group Meetings for PLS and HSP are held on the first Tuesday of the month by Zoom video conferencing. See the Events Calendar for details: https://sp-foundation.org/get-involved/events/events-calendar/
If you have any questions, please contact Lidia Pallen at lidiat@med.umich.edu or by phone at (734) 936-3087.
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There is a Spastic Paraplegia Foundation Facebook Group and many more. For those facing a rare disease, Facebook groups can feel like a lifeline. They’re a place to find practical tips, emotional support, and others who genuinely understand what you’re going through.
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This group is sponsored by the ALS Association and meets once a month on the first Saturday every month on Zoom. See the calendar of events on on our website for directions...https://sp-foundation.org/get-involved/events/events-calendar/
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Do you have ALS or PLS and have a military background? On the Fourth Wednesday of every month from 12 – 1 p.m. CT, I AM ALS hosts a meet up for veterans living with ALS to share their experiences and receive emotional support.
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SPF TALKS is online via Zoom to present and discuss subject matters of interest to people with HSP or PLS.
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The Spastic Paraplegia has a YouTube Channel full of videos, recordings and podcasts from the SPF Annual Conferences, SPF Talks, and much more.
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Here is a list of SPF Events, Fundraisers & Support Groups, In-person and Virtual. Let SPF know if something is not listed.
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An annual conference is a great way to learn from world-leading researchers and clinicians, network, reunite with old friends, and make new ones.
