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The Foundation


The Spastic Paraplegia Foundation, Inc. is the only organization in the Americas dedicated to finding a cure for two rare diseases, Hereditary Spastic Paraplegia (HSP) and Primary Lateral Sclerosis (PLS). We are a not-for-profit all volunteer organization.

Our primary goal has been to raise money to find a cure for HSP and PLS. Since our creation in 2002, we have raised and funded over $11 million in research grants. We have little overhead and last year 97% of the donations we received went towards research grants.

  • Currently, the Spastic Paraplegia Foundation Board consists of 5 office holders and 8 members that include doctors, and individuals living with HSP and PLS. All members are volunteers. The photo above was taken at the 2022 annual conference. The inserts are members not present for the photograph.

  • SPF is committed to providing information about for these disorders, creating opportunities for mutual support and sharing, and discovering the cures for HSP and PLS by funding research.

  • 2021 Annual Report

    See the 2021 Annual Report below.

Our Impact since our inception...

  • Dollars Raised

    Over 12,000,000 dollars for research!

Thank you to our generous sponsors.