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SPF Vision: The day where all individuals with HSP or PLS are diagnosed, treated and cured.

State of HSP Research: The Promise and the Reality

by Allen Bernard

Researchers working on hereditary spastic paraplegia, better known as HSP, know more today than ever before. They are uncovering new targets for drug discovery all the time. They are discovering the common pathways that cause and connect the many forms of HSP we all deal with everyday. They are finding connections between HSP, PLS and other, better known, motor neuron diseases like ALS, Parkinsons, MS, CMT type II and others all the time. This is good news for everyone.
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News And Events

Para-Equestrian Sets Sights on Gold in 2014

Unionville, PA. – June 17, 2014 – Born with a very rare genetic condition called hereditary spastic paraplegia (HSP) that keeps her from walking across a room unaided, six-time U.S. National Champion para-equestrian rider Rebecca Hart has set her sights on winning Gold at the 2014 AllTech FEI World Equestrian Games 2014 (WEG) in Normandy in August.

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SPF Illinois Connection

We had a great spring meeting.  Margaret McGovern-Denk (MS,OTR/L Northwestern Clinic) gave us a beautiful presentation on exercising and stretching given neuromuscular conditions.  She also covered Spasticity Challenges and options.  With several members in the hospital or recovering from Baclofen pump, members discussed their personal pump problems and experiences.

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MS Drug Aids Walking in Rare Condition

PHILADELPHIA — A drug that aids walking in people with multiple sclerosis may have a similar benefit in those with a rare form of paraplegia, a researcher said here, In a small, proof-of-concept study ofdalfampridine (Ampyra), 50% of patients with hereditary spastic paraplegia improved on several measures of walking ability, according to Nicolas Collongues, MD, PhD, […]

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How HSP related to PLS and ALS – This 2001 paper from SPF medical director Dr. John Fink explains how. This document can also be used as supporting documentation for SS disability claims.”



Download: HSP-in-relation-to-ALS.pdf

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