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SPF Vision: The day where all individuals with HSP or PLS are diagnosed, treated and cured.

State of HSP Research: The Promise and the Reality

by Allen Bernard

Researchers working on hereditary spastic paraplegia, better known as HSP, know more today than ever before. They are uncovering new targets for drug discovery all the time. They are discovering the common pathways that cause and connect the many forms of HSP we all deal with everyday. They are finding connections between HSP, PLS and other, better known, motor neuron diseases like ALS, Parkinsons, MS, CMT type II and others all the time. This is good news for everyone.
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News And Events

Francis Collins: We need better drugs — now

Today we know the molecular cause of 4,000 diseases, but treatments are available for only 250 of them. So what’s taking so long?

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13th Annual California TeamWalk for Our Cures and Connection Weekend September 19-20, 2014

We couldn’t have asked for a more perfect day and, as in prior years, a few new people joined us. Our Friday night dinner and “Share and Compare” discussion time (with dessert after dinner) was particularly inspiring. Kay Brady was so excited to share with the group, and her doctor gave her the okay to […]

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I’ve fallen. Now how do I get up?

Falls are a big problem Falls are a major problem for seniors who want to “Age in Place”. Unfortunately it is not uncommon for a senior to fall and be unable to get up afterwards due to a variety of underlying physical problems – even if no serious injury was sustained during the fall. As […]

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HSP Research, the Historical Perspective – Dr Evan Reid

At the Annual General Meeting of the UK HSP Support Group this past June, Dr Evan Reid gave a historical perspective on HSP research. He initially showed a graph with the number of research articles which cover HSP, ranging between 1947 and now, and described that research into HSP has fallen into three phases.

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How HSP related to PLS and ALS – This 2001 paper from SPF medical director Dr. John Fink explains how. This document can also be used as supporting documentation for SS disability claims.”

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Download: HSP-in-relation-to-ALS.pdf

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