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SPF Vision: The day where all individuals with HSP or PLS are diagnosed, treated and cured.

State of HSP Research: The Promise and the Reality

by Allen Bernard

Researchers working on hereditary spastic paraplegia, better known as HSP, know more today than ever before. They are uncovering new targets for drug discovery all the time. They are discovering the common pathways that cause and connect the many forms of HSP we all deal with everyday. They are finding connections between HSP, PLS and other, better known, motor neuron diseases like ALS, Parkinsons, MS, CMT type II and others all the time. This is good news for everyone.
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News And Events

“Pie-in-the-Face” Challenge

SPF “Pie-in-the-Face” Challenge to raise awareness for PLS and HSP. Join SPF Facebook page and join in the fun. Our twist to the ice bucket challenge.

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Peer To Peer Match My Gift Contest Winners

The winners of our Peer To Peer Match My Gift Contest last Spring just enjoyed their prize of a Gift Certificate to dinner at Tom’s Restaurant near their home in Harrison MN. They used it to celebrate their anniversary. Jeff and Gen Stern, our Maine Ambassadors, said they thoroughly enjoyed dinner out. It was delicious.

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People That Can Help

There is a study currently taking place on Inherited Neurological Disorders with the National Institute of Neurological Disorders and Stroke (NINDS). They will give participants a complimentary genetic diagnosis of their HSP type. Anyone who is interested should send an email to Alice B. Schindler, MS, CGC, Genetic Counselor/Research Coordinator Neurogenetics Branch/NINDS/NIH at schindlerab@mail.nih.gov. Good […]

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2014 Annual Conference Recap

Early Results of PLS COSMOS Projects, A Comparison to ALS – Dr. Hiroshi Mitsumoto Progress in Understanding Spastic Paraplegia – John K. Fink, MD, Univ. Michigan Dept. of Neurology Childhood Onset HSP – Mauricio R. Delgado, MD and Jonathan Rios, PhD Developing Treatments for Upper Motor Neuron Diseases – Nazem Atassi MD MMSc Rebecca Hart […]

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How HSP related to PLS and ALS – This 2001 paper from SPF medical director Dr. John Fink explains how. This document can also be used as supporting documentation for SS disability claims.”

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Download: HSP-in-relation-to-ALS.pdf

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