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Events

Events Calendar

Education & Ambassador Committee (3rd Thursday) - Times below is EST

Thursday, November 20, 2025
7:00 pm8:00 pm

The main goal of the Education and Ambassador Committee is to spread awareness and educate everyone of our rare diseases. We also review the website and keep it current.

Our Impact since our inception...

  • Dollars Raised

    Over 12,000,000 dollars for research!

Thank you to our generous sponsors.

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