January 25, 2025 : SPF Talks : Get Involved : Spastic Paraplegia Foundation

SPF Talks

How to Use The Joy Formula to Boost Your Wellbeing

Saturday, January 25, 2025 at 12:00pm CST

AUDIENCE: This SPF TALKS is intended for EVERYONE.

INVITATION: You are invited to a Zoom meeting with Jon Bockelmann-Evans on "How to Use The Joy Formula to Boost Your Wellbeing". An overview into nine simple principles that provide an easy-to-follow pathway to natural, long-lasting wellbeing for our wellbeing and emotional health

WHEN: Saturday, January 25, 2025 at 12:00 PM Central Time

REGISTER: You must register in advance for this meeting: CLICK REGISTER BUTTON. After registering, you will receive a confirmation email containing information about joining the meeting on Saturday, January 25th at 12:pm CST.

Jon Bockelmann-Evans
jbehealth.com

My career in healthcare started in the early 1990s in Wales. Qualified as a Chartered Physiotherapist and Psychotherapist, I left the NHS in 2000 to establish JBE Health.

Very quickly, I became one of the most in-demand trainers in the UK, running in excess of 60 training and masterclass courses per year, mainly in the educational sector.

Four years later, I met my soulmate Bettina.

For a short while, life was going brilliantly - until it wasn’t.

Being diagnosed with testicular cancer turns your world upside down, unexpectedly and profoundly. Within days I had to undergo surgery, followed by chemotherapy and months of rest and recovery.

During this challenging time, I made two life decisions:

Firstly, I was going to get through this. I started devising a way to blend the practical elements of my physio training with my psychology skills and some of the personal development concepts I was applying to help me through the darkest hours of my illness.

From this, I created a unique and powerful combination of techniques, strategies and belief systems. Forged in the most testing of conditions yet rooted in sound clinical practice, these have become the mainstay of my training content and have helped tens of thousands of people face up to their own life challenges - be they professional or personal.

My second decision was that I wasn’t going to waste another second of my life. I proposed to Bettina and we married the following year. We’re now the proud parents of two beautiful and healthy children.

Since then, I’ve taken nothing for granted.

Having started by running a basic 90-minute session entitled ‘Essential Stress Management’ for a group of teachers in a school near London, I've since been fortunate enough to work with global giants such as Nike, Dow and Merck, running courses for their most senior people in locations all around the world.

SPF TALKS - Biomarkers: Neuroimaging and Neuromodulation can help understand and treat HSP patients

Friday, February 7, 2025 at 4:30pm (Portuguese) & 5:30pm (English) CST

AUDIENCE: This SPF TALKS is intended for EVERYONE.

INVITATION: You are invited to a Zoom meeting with Dr. Marcondes C Franca Jr.

WHEN: Friday, February 7, 2025 at 4:30 PM (in Portuguese) and 5:30 PM (in English) Central Time

REGISTER: You must register in advance for this meeting: CLICK REGISTER BUTTON. After registering, you will receive a confirmation email containing information about joining the meeting on Friday, February 7th at 4:30pm & 5:30pm CST.

Dr. Franca is a recipient of a research grant from SPF. He is the Director of the Neurogenetics Program at the University of Campinas (UNICAMP) in Brazil. He is a neurologist with a PhD in Neurogenetics. Dr Marcondes has been involved in clinical care and research with HSPs since 2008. He follows more than 300 subjects with HSP from different regions of Brazil. His group is active in the investigation of biomarkers for HSP, particularly neuroimaging. He led the very first randomized clinical trial using botulinum toxins in HSPs.

SPF TALKS - United Spinal

Tuesday, February 18, 2025 at 5:00pm CST

AUDIENCE: This SPF TALKS is intended for EVERYONE.

INVITATION: You are invited to a Zoom meeting with Annie Streit Grassroots Advocacy Manager and Steve Lieberman serves as Senior Director, Advocacy & Policy both with United Spinal Association.

WHEN: Tuesday, February 18, 2025 at 5:00 PM Central Time

REGISTER: You must register in advance for this meeting: CLICK REGISTER BUTTON. After registering, you will receive a confirmation email containing information about joining the meeting on Tuesday, February 18th at 5:pm CST.

Annie Streit has been the Grassroots Advocacy Manager for United Spinal Association since September 2020. In this position, Annie helps to manage the 2,400+ registered advocates across the U.S., she helps run the five United Spinal Association Working Groups, she works with the working group members to create resources for the disability community, she co-hosts the virtual monthly Advocacy Live events and is the host of the monthly Meet an Advocate Live Stream. Along with her work at United Spinal, Annie writes children’s books and speaks to various groups about her experiences after the onset of her spinal cord injury in May of 2005. She has a passion for disability advocacy, working with children, and sharing her journey of navigating through life as a wheelchair user to help others, raise awareness, and create change.

Steve Lieberman serves as Senior Director, Advocacy & Policy for United Spinal Association. In this role, he oversees United Spinal's Advocacy Program, including Chapter and State Advocacy Coordinators and the Grassroots Advocacy Network, which includes more than 2,400+ registered advocates in 433 out 435 Congressional districts across all 50 states, Puerto Rico, and Washington, D.C. He also develops United Spinal's advocacy-related programming, including Advocacy Live, working groups, Roll on Capitol Hill, and Virtual Advocacy Day. Additionally, he serves as a co-chair of the Consortium for Citizens with Disabilities (CCD) Rights Task Force. Prior to joining United Spinal, he spent ten years as a staffer for U.S. Senator Bob Menendez (D-NJ). As one of the few openly-disabled Congressional staffers during his service on Capitol Hill, he developed an understanding of the most effective methods for influencing members of Congress as well as the dire need for improvement in Congressional understanding of the disability experience. Steve lives in Bethesda, Maryland with his wife and two children.

For More Information:
United Spinal Association
102 Duane Road, Fort Totten, NY 11359
718-803-3782 ext. 7040
www.unitedspinal.org