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Events

SPF Rare Disease Day

OUR MEMBER RARE DISEASE DAY VIDEOS ARE POSTED BELOW

VISIT FACEBOOK TODAY 2/28/2022. 

https://www.facebook.com/groups/HSPandPLS


Chris Falconer

Chris brings a unique and passionate story regarding his life with HSP. Click on the image for his story

Our Impact since our inception...

  • Dollars Raised

    Over 11,000,000 dollars for research!

Thank you to our generous sponsors.

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