March 13, 2025

Greg is the President of the SPF. This year will be having the 10th Annual Golfing for Rare Diseases that Greg and his wife Norma have done. Greg served 26 years as Hickman County Judge Executive, administering all facets of county government in his home county. While functioning in this capacity, he has served on and chaired a number of local, regional, state, federal, and multi-state organizations involving many areas such as tourism, health and social services, transportation, and economic development. He has been dealing with adult onset HSP since 2002. About a dozen members of his family tree over the past three generations have dealt with HSP. Greg holds a Bachelor’s Degree in Political Science and Business Administration from Murray State University and a Juris Doctorate Degree from the University of Kentucky. He lives in Kentucky, with his wife, Norma. They have 3 children and 5 beautiful grandchildren.

Jim Sheorn is Vice President and in charge of Fundraising. Jim began the 5K Run, Walk and Roll five years ago. He started the Double Good Popcorn sale and helped with the Pampered Chef Fundraiser last year. Jim graduated from the University of TN at Chattanooga with a BS in Marketing. He worked for 5 years in fundraising with the American Heart Association, followed by about 15 years in pharmaceutical sales with Bristol Myers Squibb and Daiichi Sankyo. Jim has SPG4 and lives with his wife and two children in Brentwood, TN. His daughter was diagnosed with HSP in 2023. Jim is very excited about potential breakthroughs with medical research in the near future. If you would like to help, please let him know.

Tina Croghan is on the Board of the SPF since 2012. Tina will talk about doing a trivia night. Tina is a retired teacher who still stands by the motto that greeted each student as they entered her classroom—“What we learn with pleasure, we never will forget.” Tina uses her performance and people skills to inform, advocate and fundraise for the Spastic Paraplegia Foundation. Tina has HSP and was clinically diagnosed in late 2002 and received a genetic diagnosis of SPG7 in 2014.

Tami Moynihan is a member of SPF since September 2024. Tami will talk about doing a poker night and a private dinner.

Elleaire Lyons will talk about her annual golf tournament. Elleaire is a high school student at Coronado High School, is utilizing her love for the game of golf to drive change. As a member of the Girls Varsity Golf Team for the past two years, she founded Elleaire Fore Inc. in 2023 with a mission to increase awareness, resources, and funding for those with Hereditary Spastic Paraplegia.