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The SPF Community Comes Together for the 23rd HSP/PLS Annual Conference in St. Louis, June 15-17th!  LEARN MORE

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How severe will my symptoms get?

There is no way to predict rate of progression or severity of symptoms. Generally, once symptoms begin, progression continues slowly throughout life. For some childhood-onset forms, symptoms become apparent, gradually worsen during childhood, and then stabilize after adolescence. HSP rarely results in complete loss of lower limb mobility.

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