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The Foundation

Scientific Advisory Board

How We Fund Research for HSP and PLS

Our process is simple, time-consuming, but effective. We work with a world-renowned group of scientists that are all experts in the field of neurological disorders such as HSP and PLS. This group of scientists works with us on a volunteer basis, they live all over the world and we call them our Scientific Advisory Board (SAB). Every research proposal we receive is submitted to be reviewed, carefully analyzed, and graded by at least 3 members of our SAB. Once or twice a year, our SPF Board of Directors goes to our SAB and asks them for their recommendations. The manager of our SAB, Dr. Moretti, collects, compares and contrasts all of the SAB reports regarding each research proposal and turns in their report card with recommendations to our Board of Directors. We almost always follow their recommendations to support the very best HSP and PLS research in the world. The sad part of this process is that our SAB, in recent years, has graded several more of these research proposals as blue ribbon excellent than we can afford to support. Your donations are greatly needed and will be used in the most cost-efficient, effective method possible.

Medical and Scientific Advisors

Medical Advisor

  • John K. Fink, M.D.
    John K. Fink, M.D.

    Dr. Fink is the Director of the Neurogenetic Disorders Clinic at the University of Michigan, Ann Arbor. He’s also a Professor in the university’s Department of Neurology and is a Physician Scientist at the Geriatric Research Education and Clinical Center, Ann Arbor Veterans Affairs Medical Center. His research interests are analysis of inherited and degenerative disorders of the nervous system (including hereditary spastic paraplegia, primary lateral sclerosis, inherited movement disorders, schizophrenia) and regulation of neuronal development.

    Dr. Fink received his M.D. from the Medical College of Ohio in Toledo. He did his residency training in neurology and genetics at the University of Virginia, Charlottesville. At the National Institutes of Health in Bethesda, Maryland, he did a post-doctoral fellowship in the Developmental and Metabolic Neurology and Medical Genetics departments.

Scientific Advisory Board

  • Paolo Moretti, MD, Scientific Advisory Board Chairman
    Paolo Moretti, MD, Scientific Advisory Board Chairman

    Associate Professor of Neurology; Chief of the Division of Sleep and Movement Disorders, University of Utah; Staff Physician, Salt Lake City George E Wahlen VA Medical Center, Salt Lake City, UT.

  • Timothy Angelotti MD, PhD
    Timothy Angelotti MD, PhD

    Associate Professor, Department of Anesthesiology, Perioperative and Pain Medicine, Medical Director, Life Flight (CCT), Stanford University School of Medicine, Stanford, CA.

  • Corey Braastad, PhD
    Corey Braastad, PhD

    Vice President and General Manager of Covance Genomics Laboratories, Springfield, MA.

  • Andrew Crosby, Ph.D.
    Andrew Crosby, Ph.D.

    Professor of Human Genetics, University of Exeter Medical School, RILD Wellcome Wolfson Centre, Royal Devon & Exeter Hospital, NHS Foundation Trust, Exeter, UK

  • Nicholas Alonzo Frost, M.D./Ph.D.

    Assistant Professor
    Department of Neurology
    Division of Cognitive Neurology
    University of Utah

  • Mark Gudesblatt, MD
    Mark Gudesblatt, MD

    South Shore Neurological Associates, Long Island, NY

  • Michael Kruer, M.D.
    Michael Kruer, M.D.

    Director, Pediatric Movement Disorders & Neurogenetics Programs, Barrow Neurological Institute, Phoenix Children's Hospital; Associate Professor, Child Health, Neurology & Genetics, University of Arizona College of Medicine; Programs in Neuroscience and Molecular & Cellular Biology, Arizona State University.Phoenix, AZ.

  • Mark S. LeDoux, MD, PhD
    Mark S. LeDoux, MD, PhD

    Professor, Department of Neurology & Department of Psychology and School of Health Studies, University of Memphis; President, Veracity Neuroscience LLC, Memphis, TN.

  • Colum MacKinnon, Ph.D
    Colum MacKinnon, Ph.D

    Associate Professor, Department of Neurology, Institute of Translational Neuroscience, Director of the Movement Disorders Laboratory, University of Minnesota, Minneapolis, MN

  • Niamh O'Sullivan, PhD.
    Niamh O'Sullivan, PhD.

    Assistant Professor, School of Biomolecular and Biomedical Science, University College Dublin, Ireland

  • Melissa Rolls Ph.D.
    Melissa Rolls Ph.D.

    Associate Professor of Biochemistry and Molecular Biology; Chair, Molecular, Cellular and Integrative Biosciences program; Director, Center for Cellular Dynamics; Associate Director of the Penn State Hershey MD/PhD program, Penn State, University Park, PA.

  • Jacinda Sampson, M.D., Ph.D.
    Jacinda Sampson, M.D., Ph.D.

    Associate Professor of Neurology, Stanford University, Stanford, CA.

  • Filippo M. Santorelli, MD
    Filippo M. Santorelli, MD

    Director, Department of Molecular Medicine & Neurogenetics IRCCS Fondazione Stella Maris, University of Pisa, Calambrone-Pisa, Italy

Our Impact since our inception...

  • Dollars Raised

    Over 12,000,000 dollars for research!

Thank you to our generous sponsors.