There are 3 different ways to locate a Physician/Clinic - SPF members recommended physicians/clinics, NEALS Clinics, and Movement Disorder Clinics.

The best way to look for a Physical Therapist (PT) is to go to the nationally recognized American Physical Therapy Association’s website. At the very top of the page, there’s a label Find a PT, if you click on that you can search for a therapist by geographical area and specialty, and it will list all of the PTs in a given distance who list that specialty.

Genetic testing is easier than ever. You can now do it yourself without going through a doctor. Find out more about getting genetic testing at any one of the companies below.

Every attempt is made to provide information about international organizations for individuals with HSP or PLS. There is a small handful of groups listed below that are specific to HSP, which may be open to those with PLS. There do not appear to be any international organizations specifically dedicated to PLS, however, many international ALS or MDA organizations include PLS and/or HSP in their services.

This section offers a wide variety of information, advice and answers to questions that many PLS and HSP patients have. Under Self Help Guides there is STRETCHING AND EXCERCISES, INCONTINENCE, ACCESSIBLE PARKING, and MORE.

See all the past SP Foundation Synapse Newsletters published since 2000 to 2024. The newsletter was published quarterly and provides information on news, research, practical advice and a summary of local activities.