Self Help Guides
Note: Special thanks go to the many caring contributors, to Cheryl Schumer, the founder of the first HSP website, and to Thurza Campbell, who created and edited Synapse Newsletter. These great authors have provided us permission to re-print some of their articles. Some articles edited to fit space.
John K. Fink, M.D., SPF Medical Advisor
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HSP Progression
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Spoon TheoryThe ‘spoon theory’ is a visual metaphor to explain the amount of energy a person has throughout the day. We start the day with the same number of teaspoons. Every activity uses up a given number of spoons. For a healthy person, showering may use 1 spoon, but for a person with HSP or PLS, it may take 3 or 4 spoons. A person who runs out of spoons must rest until their spoons are replenished.
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Pain Management and Treatment
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Patterned electrical neuromuscular stimulation
Gene Testing & Genetics
Caregiver
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Pain Management and Treatment
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Patterned electrical neuromuscular stimulation
Aide Dogs
Speech, Bulbar
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Living with Bulbar Symptoms
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Speech Tips
Stretching, Exercises
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We need to stretch our tight muscles and strengthen the weak muscles to slow down progression and hopefully keep ourselves walking.
Our Impact since our inception...
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Dollars Raised
Over 12,000,000 dollars for research!
