Skip to main content
Facebook
LinkedIn
Twitter
Instagram
Donate
HSP & PLS
New to SPF?
Welcome!
Register/Update
Overview
PLS
HSP
Heredity and Genetics
Differences
Treatments and Therapies
Get Involved
Overview
Donate Here
Many Ways to Donate
Planned Giving
Become a Corporate Sponsor
Events
Annual Conference
Overview
Annual Conference 2022
Past Annual Conferences
2021 Webinars
2021 SPF Webinar Series
Annual Conference Sponsorships
SPF Rare Disease Day
Events Calendar
Past Events / Fundraisers / Connections
End of the Year Appeal
SPF Talks
SPF Store
SPF Store
Be an Ambassador
Ambassador Volunteer Information
Contact an Ambassador
Support Groups
How to Help
Resources
Overview
Register/Update with SPF for FREE
HSP & PLS Informational Documents
Directories
Ambassadors
Physician/Clinic Directory
Physical Therapists
Newsletters
Synapse
HSP Forum
Self Help Guides
Government Aid & Charity Programs
Research
Overview
Research Impact
Current Studies Seeking Participants
Genetic Testing and International Organizations
Genetic Testing Links
International Links
Invitae SP/PLS Insights Network
Submit Proposal
The Foundation
Overview
Our History
Board of Directors
Scientific Advisory Board
Corporate Documents
Ronnie Lee Grove
Ronnie Lee Grove
SEARCH
MENU
Home
Get Involved
Be an Ambassador
Ambassador Volunteer Information
Overview
Donate Here
Many Ways to Donate
Planned Giving
Become a Corporate Sponsor
Events
Annual Conference
Overview
Annual Conference 2022
Past Annual Conferences
2021 Webinars
2021 SPF Webinar Series
Annual Conference Sponsorships
SPF Rare Disease Day
Events Calendar
Past Events / Fundraisers / Connections
End of the Year Appeal
SPF Talks
SPF Store
SPF Store
Be an Ambassador
Ambassador Volunteer Information
Contact an Ambassador
Support Groups
How to Help
SPF Vision Statement
The day when all individuals with HSP or PLS are diagnosed, treated and cured.
Return To List
HSP & PLS
New to SPF?
Welcome!
Register/Update
Overview
PLS
HSP
Heredity and Genetics
Differences
Treatments and Therapies
Get Involved
Overview
Donate Here
Many Ways to Donate
Planned Giving
Become a Corporate Sponsor
Events
Annual Conference
Overview
Annual Conference 2022
Past Annual Conferences
2021 Webinars
2021 SPF Webinar Series
Annual Conference Sponsorships
SPF Rare Disease Day
Events Calendar
Past Events / Fundraisers / Connections
End of the Year Appeal
SPF Talks
SPF Store
SPF Store
Be an Ambassador
Ambassador Volunteer Information
Contact an Ambassador
Support Groups
How to Help
Resources
Overview
Register/Update with SPF for FREE
HSP & PLS Informational Documents
Directories
Ambassadors
Physician/Clinic Directory
Physical Therapists
Newsletters
Synapse
HSP Forum
Self Help Guides
Government Aid & Charity Programs
Research
Overview
Research Impact
Current Studies Seeking Participants
Genetic Testing and International Organizations
Genetic Testing Links
International Links
Invitae SP/PLS Insights Network
Submit Proposal
The Foundation
Overview
Our History
Board of Directors
Scientific Advisory Board
Corporate Documents
Ronnie Lee Grove
Ronnie Lee Grove